Topics

Air-exhausting systems, what has to be paid attention to
Dear expert team, I move with my daughter (CF, 18 months old) to an appartment, where the bathroom has no window: there is an air-exhausting system (which one exactly, I do unfortunately not know). I have already looked for adequate former questions on the ecorn-cf site, however I could not make ...
14.05.2014
Painting with mutation 2789+5G A
Hello, I am carrying the mutation 2789 +5 G A. I don't have enough money to pay a painter and I absolutely must do interior work (for a healthier environment, wallpaper peeling off, accumulating dust below) and outside. I have 2 questions for you please: Outdoors, glycero paint, and water, do I ...
12.05.2014
Cystic fibrosis and beta-thalassaemia
Is there a chance for somebody to be a carrier of CF and beta-thalassaemia simultaneously? What is the correlation between the two and the chances/impact in having children?
12.05.2014
Inflammation of the salivary glands?
Hello, My son (7 years old) suffers from CF and has an inflammation of the salivary gland for 4 weeks, he has been given antibiotics and it did not help. We have been to the ENT doctor and he said that this would rather be a typical finding in CF.????? An ultrasound has been done, however there ...
30.04.2014
Building a house
We would like to build a massive house made of wood. Does anything speak against a wooden house from the standpoint of CF? What about a ventilation system?
30.04.2014
Share a room
Hello, I would like to know if my little 5 year-old boy with cystic fibrosis may exceptionally share a room with his sister or with a friend during the holidays? Thank you in advance.
15.04.2014
MDMA and E
Hi there, I wondered if you could please tell me about the effects of MDMA and E from a systems perspective on a person that has cystic fibrosis or if there were any links to literature/information handouts anywhere? I am a health professional that has recently been asked this by an ...
08.04.2014
Manuka Honey
I have read a paper explaining that Manuka honey could not work in CF patients because it can not be inhaled and when taken orally, it would not reach the lung. I am not scientist, hence perpaps this is a silly question, but why can manuka honey not reach the lung when taken orally, but oral ...
08.04.2014
Room Temperature
What is the BEST room temperature for a person with CF?
08.04.2014
Can NaCL infusion help CF patients
Dear Sir/Madam, I am a mother of a child with CF. Maybe my question is stupid as I do not have medical background, but I am wondering can usage of Na Cl infusion through the blood once a week help CF patients in term of bringing salt through the blood into lungs, pancreas, stomack, etc.? This ...
08.04.2014
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