Topics

cystic fibrosis in a 3-year-old child
I have a 3-year-old boy diagnosed with CF, homozygous delta F508. Can he take Pulmozyme® and what is the dose, given that in the prospect is specified only over 5 years of age? Thank you
12.02.2014
Disinfection of inhalation device
Hello, how do I disinfect most effectively the different parts of the eFlow after inhalation, in case there is no vaporiser, electric water jug or similar devices and there is even not the possibility to heat/boil the different parts? Are there special solutions, in that the parts can be ...
11.02.2014
Cayston®, hemoptysis?
My son, 33, is told to inhale Cayston® (aztreonam) and has worries after reading the drug leaflet. He has had 3 times hemoptysis with years intervals inbetween, 2 times he had to be admitted to hospital due to this, whereby it was not necessary to intervene in the end. It is not written in the ...
03.02.2014
Pulmozyme®
Dear experts, you write in an answer to a question from january 2013 that Pulmozyme® (rh-DNAse) has to be broguht to room temperature before inhaling, therefore should not be inhaled directly when taken from the fridge. May I ask where this information comes from and why it is not written in the ...
03.02.2014
Tobramycin
My child has Pseudomonas and uses tobramycin inhalations. What is the duration of treatment?
27.01.2014
Demineralized water and antibacterial hand gel
Once opened, how long can an antibacterial and antifungal hand gel for the preparation of aerosols for my child with cystic fibrosis be used? Do you recommend some in particular, maybe more effective in relation to the disease? How long is the deionized water useable, once opened for sterilization ...
20.01.2014
Pulmozyme® for children under 5 years of age?
Hello, the treating physician at our CF center put the intake of Pulmozyme® (rh-DNAse) up for debate. Our son is 3.5 years old and got rather incidentally the diagnosis of CF. He has been admitted to hospital due to complaints of asthma and bad oxygen saturation after an infection and at time ...
07.01.2014
Cayston®
Dear expert team, I inhale for more than one year Cayston® (Aztreonam), as the company indicated 28 days of inhalation, then 28 days pause. My physician in the CF center told me now to inhale Cayston® without pause. Are there any studies, yet, if this could probably lead to an ...
17.12.2013
Bronchitol® and NaCl 5.85%
Dear expert team, I (26, CF, FEV1 about 65%) inhale for years a lot with NaCl 5.85% (20 minutes in the morning, 30 minutes in the afternoon and 30 minutes in the evening) as I can cough up my suptum very well with this and I breathe easier after this. For a few months, I inhale after that in the ...
11.12.2013
Inhalation in case of resistant Pseudmonas
My son is 33 years old, mutation genotype deltaF508 and R553x. He has inhaled colistin for decades and now his Pseudomonas germs are resistant. Furthermore I ask myself if it is not possible however, that in case of such a long exposure colistin passes minmally the blood-brain barrier as he ...
21.10.2013
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