Topics

Use Nasonex® in Pari Sinus?
I had a surgery due to many nasal polyps (adenoids) and am now using Nasonex® (nasal steroid spray), nasal douche and Pari Sinus as recurrence prevention. Can I inhale Nasonex® with the Pari Sinus? Many thanks and best regards, I. J.
12.08.2013
Always pseudomonas after visiting swimming pool – does colistin help prophylactically?
Hello, Our daughter (12 years, CF) was three times in an open air pool in her life and each time she had pseudomonas afterwards. It was always possible to eradicate it and she never had pseudomonas again. As a matter of course she would like to go to the swimming pool but until now we have ...
31.07.2013
colistin
Hello, I would like to ask you how many types of Colistin do exist? Can we mix 1ml powder I.U. with 10 ml saline solution for nebulization? Can one use 5 ml twice daily on a 6-year-old girl for sinusitis? Thank you.
08.07.2013
Pulmozyme®
Hello, we have started Pulmozyme® (rh-DNAse) a few months ago for our child. For me it was an unnecessary treatment because of my child's excellent health status (no secretion and very few antibiotics). I relalize that his condition has deteriorated since. New bacteria have appeared. I have some ...
02.07.2013
Drug
The drug Bretaris Genuair® is given in case of the illness "COPD". Has anybody experience if it is also suitable for CF?
24.06.2013
Nebulizing time, devices
Dear expert team, Having received a bad MRI result we have to increase the therapy effort of our 22-month-old daughter. That means: In the morning and in the evening 4ml 6% HTS (hypertonic saline) and at noon 2,5ml Pulmozyme® (Dornase alpha). Currently, we are using the device “Pari Boy ...
12.06.2013
Sterilizing device
My cystic fibrosis son needs to change his sterilizing device because it’s broken (we use it for sterilizing his two e-Flow kits). The old sterilizing device was too bulky for so few parts. Do you know if small sterilizing devices are commercialized (not for microwaves)?
12.06.2013
Achromobacter xylosoxidans
Dear expert team, are there any new insights on this germ or on the treatment possibilities or is it still Cayston® (aztreonam) that is used in the treatment of this germ? Why is however then this germ not mentioned in the description of the drug, but only Pseudmonas? At what time would you ...
27.05.2013
Inhalation of sodium bicarbonate
Dear expert team, I would like to know in which cases it is recommended in CF to inhale NaHCO3 (sodium bicarbonate), how this is done (amount/frequency/dosage/kg or age) and if this inhalation is done in addition to the inhalation with NaCl-solution or instead of it (i.e. in addition with ...
15.05.2013
Bronchitol® benefit
Bronchitol® is proposed to CF patients. Is the treatment added to inhaled hypertonic saline serum/ inhalation with salbutamole or does it subsitue the treatment? What about differences between lipromatase and CREON®?
13.05.2013
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