Topics

TOBI® (tobramycin) and Ventolin® (salbutamol)
Hello, I have several questions: 1.) When inhaling with tobramycin I notice a strong mucolytic effect. After the inhalation I have a lot of sputum. Much more than after inhaling 6% NaCl or Pulmozyme® (dornase alfa). Is it a side effect of tobramycin that the production of sputum is ...
31.03.2011
Maintenance of e-flow
We were advised to use the product “ummonium” to disinfect the nebulizer (reservoir + mesh). On the other hand we do not hear that this product is not being recommended for use in several CF reference centers. Why not? Has this product been tested for efficacy? Many people report problems with ...
21.02.2011
Worsening of the lung function due to tobramycin inhalation
Dear expert team, I have been diagnosed (23, CF) with Pseudomonas aeruginosa lately for the first time. We decided to eradicate with 3x750mg ciprofloxacin p.o. over 3 weeks and inhalation with 2x300mg tobramycin with a 28-days-change with 2x2 Mio. I.U. Colistin over 6 months altogether. My ...
09.02.2011
Aerosols and contamination
Hello, My 7 years-old CF son is treated with nebulised RhDNase. He is using a disposable jet nebuliser (PortaNeb). Recently, 3 different bacteria have been found in high quantity in his sputum: Stenotrophomonas maltophilia, Rhizobium radiobacter, and Chryseobacterium indologenes. Fortunately, ...
02.02.2011
Disinfection
Hello. My 14 years old son is currently treated in a research protocol with inhaled bromure tiotropium, 2 puffs each morning. It’s just like inhaled salbutamol. When I have asked about disinfection of the mouth piece of the pressurized metered-dose inhaler (pMDI), the CF Centre staff said that, ...
02.02.2011
Droplet size (mass median diameter/MMD) in eFlow and Pari Boy SX
Hello, for 0,9% sodium chloride (aq), the data sheets for eFlow and Pari Boy SX specify (with the same measuring method) an MDD of 3.9µm for the eFlow, 2.9µm for the Boy SX with blue nozzle insert in the LC Sprint nebulizer, and 2.2µm for the red one. Earlier, I was supposed to nebulize ...
11.01.2011
about tobramycine
What has to be done for a CF patient to receive treatment with aerosolised tobramycin ? I know that the treatment is expensive and is not given to all CF patients.Thank you for the answer!
11.01.2011
Prevention
Hello, I have a 2 1/2 years old son with CF. I was wandering weather nebulized hypertonic saline could prevent colonization, or what other mesures would help/prevent any infection risk. Is it a good idea? Best regards,
06.12.2010
CAYSTON (Aztreonam Lysine)
Hello. We asked that our daughter benefit from Cayston®. Could you tell me wether the tests are conclusive and if the people who experienced it have felt some improvement?
30.11.2010
flixotide
Hello. I have a child with CF and my doctor recommended treatment with Flixotide. I have given two ampoules / day for 5 days but as I did not understand well, I am not sure if this was right. Then I read the prospectus and I am afraid of adverse effects on children.
13.01.2011
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