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Keywords
- ABPA_Aspergillus
- accompanying diseases
- air-improving devices
- allergy
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- asthma
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- covid-19
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- ENT
- general aspects
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- hepatobiliary disease
- hygiene
- i.v.-lines
- inhalation
- lung
- microbiology
- miscellaneous
- modulator therapy
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- oxygen supplementation_therapy
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Topics
- IRT-test elevated
- Hello, the screening of my newborn showed an increased IRT-value. Now we have to have it controlled in 2 weeks. Have now great fear that my son could suffer from CF. What is the probability? Many thanks in advance, M.
- 05.06.2013
- MRI for a 5-year-old child?
- Hello, we have a 5-year-old child with CF. Our child is doing very well. Up to now, no problematic germs have been detected and the lung function is also very good. Now we have been told at the last visit of the CF center, that one would like to do in future an MRI with our child in order to ...
- 05.06.2013
- healthy carriers
- My niece has CF, the whole family has been tested and two other children are carriers. So 1 out of 7 children has CF and 2 are carriers. The other two children are compared to the non carriers often sick, so I told my sister in law who I thought was carrier of CF in her family. This was ...
- 03.06.2013
- G542X /5t and PA
- My 7 year old son was diagnosed with carrying g542x and 5t. This diagnosis was made when he was 6 years old after experiencing syringeal akrokeratoderma in his hands (exessive wrinkling of the palms). He has a sweat test of 39 and then 40. The wrinkling of the hands only lasted for about 3 ...
- 29.05.2013
- CF
- My daughter is 4.5 years old. She has been diagnosed to suffer from asthma at the age of 3 years. She is ill very often, every moth at least one time and nearly every time she has a pneumonia! She is spitting then always very much of a thick yellowish mucus that is like chewing-gum. She has had a ...
- 15.05.2013
- Elastase: two different results
- Hello, My 12-month-old son had last month an elastase assay which showed a moderate exocrine pancreatic insufficiency. 15 days later, a new analysis indicates that there is no failure. Which value should we believe? The only difference between the two tests is the type of diet. Can it affect ...
- 13.05.2013
- Elastase
- Hello, Because having a cyst for many years that compresses the pancreatic duct, the gastroenterologist did an analysis of elastase. The result is 543 mg /g. Should we be worried about this or is it just normal? I saw that above 200 = normal subject, but with my 543 = am I wrong?
- 07.05.2013
- Potential cystic fibrosis
- Me and my husband are CF carriers. I have the F508del mutation and my husband the R117C. We have a two year-old daugter with a mild CF and a five and a half year-old son with the F508del mutation. Some doctors and genetists say that my son is simply a carrier, even though he has two sweat tests at ...
- 10.05.2013
- CF yes or no?
- Hello, My 4 month old daughter has F508del and R117H (7T,9T) What are the risks to have CF? Thank you
- 06.05.2013
- Aquagenic keratoderma in a 8 year-old girl
- Hello, My 8 year-old daughter has, since December 2012, an Aquagenic keratoderma (she is unable to keep her hands in the water, after a few minutes a painful unbearbale swelling occurs). The dermatologist in the hospital confirmed this, prescribed a sweat test (the result was 26) and now ...
- 03.05.2013