Topics

association in Morocco
Hello, A friend has a ​​9 month old baby, he has just been diagnosed with CF. The doctors are not trained because there are very few cases in Morocco. I am doing some research to help. I turn to you. Are there specialized units? Rabat? Casablanca? .... Is there an association that could ...
02.05.2012
CF teams in the Netherlands
Where are the 7 CF teams situated in the Netherlands?
02.05.2012
Lung Clearance Index-European location
Dear questioner, First of all thank you for your prompt answer. I am interested in taking the Lung Clearance Index test in a European country where we can comunicate in english/french and where it isn’t so expensive. I am thinking first of Vienna or Spain (if we can comunicate in english) or ...
22.03.2012
Searching for a dentist
Hello, I am searching for a good dentist for a CF child in our region [comment from ECORN-CF: the question was from Germany, concrete names were left out]. The dentist in our home town and a pediatric dentist refused to treat our son, and sent me to the next university hopspital. There I also have ...
22.03.2012
moving to Germany
hello, my son has cystic fibrosis and is treated in France since birth. My husband will be transferred to Germany and I want to know whether he can be followed there knowing that I do not speak any German? thank you for your response
28.02.2012
CF care in Guadeloupe
Hello, We leave next summer for Guadeloupe for three years. Do you have advices on the care pathway that we will have to prepare ? Physicians, pulmonologists, physiotherapist
27.02.2012
CF Centre in Mallorca
Is there a specialised CF centre for children in Mallorca?
27.02.2012
Money and CF
Hello, I would like to know why there lacks so much money in the fight against cystic fibrosis, and how to fix it ? Thank you in advance.
14.02.2012
follow up the disease
My baby has deltaF508 and R1070W and is almost healthy (details are in a previous question). How do you recommend to treat the baby so that we do not tantalize with many investigations but also keep on eye on the disease. E.g. it was recommended to me to do monthly analyse of sputus, but I see ...
24.01.2012
cf assosiations in Greece
I am a mother, used to fighting. One of my children has CF. It is still young and the problems are few for now. There are days, however, that I do not feel strong. I think why this thing had to happen to me, why must my child and my family pay for a medical mistake, how can I make my child strong ...
12.01.2012
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