Topics

Emigrating
Hello, We have a 15-month-old son who suffers from cystic fibrosis. We have the option of relocating to Mallorca, or otherwise to only spend the winter months there. Would you consider this to be an advantage for our son’s health due to the milder climate? Many thanks in advance.
23.11.2009
Spending a school year in Ireland
I am going to spend a school year in Ireland. What’s the procedure with prescriptions and medication in Ireland? (Will I have to pay for the medication etc.)? And how can I find a doctor there who knows about CF?
19.11.2009
Single room at the hospital?
Hello, hue to nightly cough, digestive problems (specifically: flatulence) and the fear of infections I would feel much more comfortable getting a single room when being admitted to the hospital. Is this advisable/necessary from a hygiene perspective (own bathroom and toilet) as well? Best ...
10.11.2009
Hygiene of a lose brace
Dear expert team, how is the best way of keeping a lose brace free of germs? Can it be disinfected in the vaporisator (how often??), do the metal strands stand it?? Has it to be cleaned with disinfectant?? Many thanks for your answer
09.11.2009
CT for follow-up?
Our doctor at the outpatient clinic recommended doing an annual CT for CF follow-up with our one-year-old daughter. Is that exaggerated? What about benefits and significance compared to radiation exposure? Is radiation exposure much higher than with X-ray? Thanks in advance.
29.10.2009
CF Centre
I’m a 41-year old man and at young age they incidently discovered that I have cystic fibrosis. Because I’m not often sick not a lot was done about it. At a later age it appeared that my vas deferens is not well developed and recently (probably already several times) I had pancreatitis. On ...
20.07.2009
CF children chance
Hello, Dear doctors , with respect for your work, I want to ask why our country can not follow the ''developed'' treatment scheme on CF? Our children prognosis is painful for us , while abroad patients live 40 - 50 years a relatively normal life? Why doctors from other cities treat disease ...
10.08.2009
Search for a suitable CF-center
Dear expert team, I am 29 years old and I am searching for a suitable CF-center for me. My lung function is normal. I have a liver-cirrhosis with oesophageal varices (IV) and a diabetes. Probably you have an idea. Many thanks in advance.
02.07.2009
CF and extraction of primary tooth
My son (8 years, CF) has an inflammed primary tooth! What has to be considered at the extraction?
15.06.2009
Information on health professionals involved in CF
I am researching CF and am wondering if I were a patient which types of health professionals would I come into contact with
12.05.2009
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