Topics

Searching for a specialized CF physiotherapist
Hello my 8y. daughter has three physitoherapy sessions per week. I'm desperately searching for a physiotherapist who knows the clearance techniques in my neighborhood [31300 Toulouse Casselardit, France] and set a physiotherapy session at school. Thank you for your reply.
31.07.2013
Trip to England
My 16 year old daughter is going to spend two weeks this summer in England in Bournemouth. Is it possible to find a respiratory physiotherapist or will she have to do the physio herself ?
31.07.2013
Vacation in Italy
Hello, We are going on vacation for 15 days in Italy. Are there any trained respiratory physiotherapists and what about the the French Health Insurance coverage regarding the care expenses reimbursement?
30.07.2013
Cystic fibrosis
DEAR EXPERT TEAM I would like to know more about the availabilty of Kalydeco® in Bulgaria and if there will be any point for someone suffering from CF with the mutations 621+1G/T, N1303K to try this medication and also if not suitable what other treatment should we look for in order to keep ...
22.07.2013
change doctor
Hello, I am the mother of a 4.5 year-old little girl. We got to know that my daughter has CF; she has to take treatment. She is followed up at a female physician X but the concern is that I don’t get along well with her doctor. She speaks to me badly and reproaches that I do not care for my ...
15.07.2013
Disease severity degree
Hello, my 2-year-old CF daughter requires since birth very intensive care. The disease leaves her no lull. Today I am very worried about her life expectancy ... What are the criteria for severity of the illness? Are there still children who die young? Thank you in advance for your answer to this ...
15.07.2013
CF
My little girl is 11 years old. In 2007 we went to Timisoara [Romania], to Dr. Zagorca Popa for CF. It all started at the age of 8 months with celiac disease, followed from the age of 5 by bacterial pneumonias. The genetic test was negative, but the sweat test was positive (68, 58). 5 years have ...
08.07.2013
Training to perform intravenous antibiotic treatment - traning for care for relatives
My husband has CF. It's more and more difficult to find nurses who agree to stay at home during the time intravenous antibiotics are given. I would like to receive training and be allowed to prepare and perform the intravenous antibiotics. Could you tell me if this kind of training exists and if ...
19.06.2013
chiropractor
My granddaughter is 5 years old. Can a chiropractor help her? She is having breathing problems. She has had 3 visits in the hospital in the last 7 months with low O2 stats.
13.05.2013
Treatment of CF in Paraguay
Is there any caring CF-center in Paraguay?
10.05.2013
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