Topics

Pseudomonas
Is Pseudomonas (lung) curable?
03.03.2014
FEV1
Hello, I am a 46-year-old CF woman and my FEV1 has decreased after a pneumonia, that has been treated for 4 weeks with an i.v. cure because of Pseudomonas, about half of the value from 52% to 28% and I still need oxygen, two months after discharge from the hospital, in spite of the fact the ...
17.02.2014
Stagnant water?
Dear expert team, the grandparents of our daughter (2.5 years old, CF) spend their summer holiday every year at the Lake Constance. This year they would like to invite our daughter to go with them there. They both want to calm our worries concernig swimming lake and Pseudmonas danger with the ...
17.02.2014
CF and airing of the house, house building
We have the possibility in our new house to use the air that has been cooled down in earth wires as airing for the rooms and air-conditioning. As our daughter is a CF patient, we ask ourselves if in the wires Pseudomonas aeruginosa could grow and can distribute via the air-conditioning in the ...
17.02.2014
Indoor playground
As being mother of a little girl (16 months old) with CF, I would like to show her the joys of indoor playgrounds (ball pit, slides), but I would like to know if it is possible and if there is a problem with bacteria? Thanks
03.02.2014
Visit of indoor playground / danger from strong fan of jumping castles
Dear expert team, is there any danger from the fan of a jumping castle? Partly completely closed "rooms" with strong fan/ air pressure. I have already tried to get some information myself, however do not find any answer. My son (CF patient, 5 years old) is invited to a birthday party, which ...
03.02.2014
Air humidity
Dear expert team! There is a former question (http://ecorn-cf.eu/index.php?id=65&L=0&tx_expertadvice_pi1%5Bshowitem%5D=2767&tx_expertadvice_pi1%5Bsearch%5D=) that have only been asked and answered recently, that deals with the improvement of the air humidity in the bedroom in the wintertime. This ...
03.02.2014
Tobramycin
My child has Pseudomonas and uses tobramycin inhalations. What is the duration of treatment?
27.01.2014
Risk of lung function test
Hello, I am 35 years old and due to an unfullfilled wish to have a child a genetic testing has revealed a mutation (F508, a full sequencing will soon be done). Because of my infertility (even if sperm ducts are present) my physician initiated a sweat test. Result 46 (control area). In the ...
27.01.2014
Regular i.v. therapy?
Hello, my son is 6 years old and has the Pseudomonas already for about 4 years. In the year 2012, 2 i.v. therapies had been done, as he did not well either. This year he has stayed free of infections and has no restrictions. The Pseudomonas has not beed detected anymore in the throat swab, ...
11.12.2013
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