Topics

Puddles
Should we be wary of puddles? Can we let our kids jump in puddles? Can you ride through puddles with bikes, strollers ..... ? Thank you.
09.04.2013
Bath tub with whirlpool function
Dear expert team, due to an upcoming renovation of the bathroom I (25, CF, Pseudomonas negative) am thinking about bying a bath tub with whirlpool function. I know, that public whirlpools / jacuzzis are not recommended due to an increased risk of Pseudmonas. Is this danger relevant also for ...
09.04.2013
Pseudomonas
My son is 4,5 years old and is sensitive to bronchitis and bronchiolitis since he was one year old. Recently he was detected with pseudomonas. His case does not appear to be cystic fibrosis, since he is a very tall and heavy child (118 cm tall – weighs 27 kg). The results from the amniocentesis ...
25.03.2013
Pseudomonas
If I touch the hand or foot of a person with pseudomonas, is there a chance I could get infected or carry the bacteria to a third person?
05.03.2013
systematic sputum / cough swab culture
Hello, The CF centre of my daughter does not practice cough swab systematically at each visit. We are afraid of missing out a bacterium that could worsen the health of our daughter. We are in February and the last culture was done in September. Can I ask them to do it consistently? Can a local ...
04.03.2013
vaccine against Pseudomonas and Staphyloccocus
Hello, I have heard of vaccine clinical trial phase II and III called IC43 (pseudomonas) and V710 (staphyloccocus). Do you know more?
04.03.2013
Pseudomonas and hygiene
Dear expert team, I know, that similar questions have already been asked several times before, in spite of this, I as a mother of a 15 year-old girl with CF, am again and again insecure when reading the newest recommendations concerning hygiene in daily life. We have again a positive finding of ...
04.03.2013
outdside games
Hello, Are public parks (slide, swing, etc) not recommended for children with cystic fibrosis? Thanks
04.03.2013
Eradication of Pseudomonas aeruginosa infection
My daughter cultured Pa at the last clinic visit. She was symptom free. The doctor prescribed 28 days of inhaled Antibiotic, and I asked to add an oral antipseudomonal, but she would not. Finished the 28 day cycle, and a week later my daughter has a raging lung infection and now pneumonia. I ...
04.03.2013
Cross infection and CF centre
Hello, we ask ourselves about the CF centre and hygiene during the visits. 1 - In fact, our children go from room to room, in the hallways, intersect with other children with or without mask, while in some countries the patients remain in a room and it is the staff who moves in a specific order ...
28.02.2013
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