Topics

Wet home
Hello, I have a little 5-year-old boy with cystic fibrosis, this summer we want to go on holiday next to Pornic (44) where my grandparents have a small house but we sleep in the bungalow (it’s an old garage). They live 50 meters from the sea, the bungalow is wet, they put regular anti-humidity ...
12.05.2014
SPA and cystic fibrosis
Hello, I am 33 years old and I have CF and I would like to buy a SPA to put in my garden, I wanted to know if there was an indication against. If there is not, what product to treat water is the best: bromine, chlorine etc.? Thank you.
12.05.2014
Swimming with Pseudomonas
Dear ladies and gentlemen, can a CF patient go swimming in a pool if he has Pseudomonas? Thanks and best regards,
15.04.2014
Swimming
My son (aged 7) is due to start swimming with school in January. The pool used by the school is not chlorinated but the water is cleaned by ultra-violet light. Would this pose any infection risk for someone with CF? Thank you.
08.04.2014
Pseudomonas aeruginosa
Hello, My 3 old-year daughter is colonized with Pseudomonas aeruginosa for 1 year. She is treated by intravenous antibiotics (ceftazidime + tobramycine) every 3 months. May the Pseudomonas aeruginosa become resistant to this treatment ? If yes, how long is it to be resistant? In case of ...
08.04.2014
hot tubs, jacuzzi, spa baths
We need to explain to friends why our grandsons (11 and 14) are not allowed to go into hot tubs, jacuzzis, spa baths etc. Please could you recommend research documents (if any) or any written material to help us put this danger to our grandsons over clearly to anyone who may have care for ...
24.03.2014
Rivers & CF
How high are the risks & what are precautions we should take with a toddler cfer and playing in a river? Specifically the Guadalupe/Comal? High vs low?
24.03.2014
Pseudomonas aeruginosa
Is there a mean age of primo-colonization with Pseudomonas aeruginosa for CF patients? After primo-colonization, is it possible to eradicate Pseudomonas for a long period of time or should patients expect chronic Pseudomonas infection immediately after primo-colonization? Thank you.
24.03.2014
CF mutations
I am a mother to a girl with F508del/CFTRdele2,3 (21kb) mutations. She was diagnosed at 2 months old. Now she is 5 and doing very well. Only 2 lung infections, no P.a cultured. Still I am concerned as I read both of the mutations are clasified as "severe". Does it mean that the progress of the ...
24.03.2014
Duct heating system?
Does anyone know if this type of heating system is a threat to those with C.F.?
24.03.2014
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