Topics

outdside games
Hello, Are public parks (slide, swing, etc) not recommended for children with cystic fibrosis? Thanks
04.03.2013
Eradication of Pseudomonas aeruginosa infection
My daughter cultured Pa at the last clinic visit. She was symptom free. The doctor prescribed 28 days of inhaled Antibiotic, and I asked to add an oral antipseudomonal, but she would not. Finished the 28 day cycle, and a week later my daughter has a raging lung infection and now pneumonia. I ...
04.03.2013
Cross infection and CF centre
Hello, we ask ourselves about the CF centre and hygiene during the visits. 1 - In fact, our children go from room to room, in the hallways, intersect with other children with or without mask, while in some countries the patients remain in a room and it is the staff who moves in a specific order ...
28.02.2013
Are swimming pools an unnecessary risk after all?
Dear ECORN experts, It seems to be a common view that swimming in well maintained indoor pools is safe for people with CF but I'm starting to wonder if this really is so? I have discontinued my son's swimming lessons because he regularly had both staphylococcal and fungal infections in his ...
28.02.2013
Pseudomonas aeruginosa
Hello, I have a little 2 years old boy with cystic fibrosis. What do you think of using a steam cleaner for home maintenance, is it dangerous to use? Are there risks of developping pseudomonas?
28.02.2013
hygiene
Hello, I have a two year old child with CF and was wondering since when did we become aware of the importance of hygiene? And if with all this chlorination does cystic fibrosis actually progress more slowly? Is there data on this subject? On the other hand if you are very strict concerning ...
18.02.2013
Snow
Hello, Is snow dangerous for people with cystic fibrosis? (in the sense that it can represent a large reservoir of stagnant water) Thank you.
04.02.2013
Pseudomonas and wind instruments
My daughter would like to learn one of the following instruments: flute (German flute), saxophone, clarinet, horn, trumpet. We are worried that a water bug (Pseudomonas) could colonize the instrument since these instruments cannot be cleaned very well. Is one of the instruments more suitable than ...
04.02.2013
Cross infection Pseudomonas aeruginosa
Hello I am afraid of my daughter catching a pseudomonas infection in our cystic fibrosis center. The policy at the clinic does not separate patients with pseudomonas from patients without pseudomonas. Is this ok and what is recommended on other clinics? A concerned parent
18.02.2013
Hygiene
I have heard once, that study data on the question of infection with Pseudmonas in the household (e.g. via wet tooth brushes, flowerpots) is sparse and no statements on the risk of an infection can be made. In the field of hospital stays however, there would be much more studies on the risk of ...
22.01.2013
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