Topics

Pregnant?
I am 32 years old now and I know that my husband would like to have a baby. Of course me, too! But I am a bit more sceptical and I am afraid that I am going to do harm to the baby during pregnancy as I am taking drugs since my fifth year of life: 8 mg prednisone 500 mg theophylline L-Thyroxin ...
23.04.2008
Arthritis and CF - how to treat
I am a near 40 year old female with CF. The last 15 years I have suffered form arthritis, and the last 6 years it seems to have exploded. All of my fingers are now affected, and I have had several surgeries to remove destructions and to permanently stabilize joints, thus leaving my fingers stiff. ...
08.07.2008
Distented stomach
My daughter is 2 years old and was born with a meconium ileus. Therefore the diagnosis of CF was made very quickly. She has had an artificial anus that has been reposed. Since then she suffers from an extremely distended abdomen, in the ultrasound you see very very much air in the stomach and ...
08.07.2008
Amyloidosis in CF
Dear expert team, Do you know an expert who is well experienced in amyloidosis in Cystic Fibrosis? Especially the kidneys are severely affected by the amyloidosis. The FEV1 is approx. 35%. A chronic colonization with pseudomonas exists for many years. Age 45 years. Many thanks for your ...
15.02.2008
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