Topics

Role of CFTR protein
Hello, Can you explain in great details the mechanisms of antimicrobial immune defense in CF and the role of CFTR in these mechanisms. Thank you for your answers
11.12.2013
Nasal polyps, complete occlusion - 12-year-old son
My newly diagnosed 12-year-old son, 2 positive sweat tests, complete occlusion of the right and left nose, should undergo an operation. Who has experience in this field, how are the chances for his cure (risk of relapse?) respecitvely which kind of therapies, food supplements etc. are there for ...
03.12.2013
Sleep apnea?
For a long time (several years) I "buzz" when I fall asleep or while I am sleeping. It deals with a kind of groaning noise, when I am woken up I often remember to have just had some talks in my dreams. Until now I thought this was due to the lively dreaming, however I have come across the sleep ...
26.11.2013
Paleness
Dear expert team, My daughter is 8 years old and has CF (F508 del homozygous). Her oxygen saturation and lung function are good, and everything else has also been okay so far. She is very pale, so that after a picture was taken of her recently, she said she looked like a vampire. What can I ...
22.10.2013
Nasal spray
Hello, I had asked a question to you about the nasal spray sometimes ago, but my question was not good. I wanted to know how long the spray can be open before there is a risk of finding Pseudomonas aeruginosa in the spray. You said “2 months”. Do you think that the spray could not be used after ...
15.10.2013
Nasal spray
Hello, I would know how many time a nasal spray may be used after the first use. Thanks for your response.
07.10.2013
Use Nasonex® in Pari Sinus?
I had a surgery due to many nasal polyps (adenoids) and am now using Nasonex® (nasal steroid spray), nasal douche and Pari Sinus as recurrence prevention. Can I inhale Nasonex® with the Pari Sinus? Many thanks and best regards, I. J.
12.08.2013
Osteoporosis – necessary measurements
[Please note that the original German question also included questions about the reimbursement from the health insurance. These parts were deleted from the question and answer since they are not relevant for the cross-national Central Archive.] Dear expert team, About the topic CF and ...
14.08.2013
Anti-reflux
Hello. We have a child who has cystic fibrosis and we would like to know if the anti-reflux medications, from a general point of view, were unsuitable for them? I'm not an expert but it seems to me that these drugs are designed with the aim to "stuff" and therefore they could harm the ...
15.07.2013
Lung function declined
[The original German question was asked in telegraphic style - this is also reflected in the translation] Hello, I am 38 years old and have CF. Since about half a year my lung function has declined. FEV1 35% and alltogether about 50%. The MRT does not show any decline. Oxygen is normal (97%). ...
01.07.2013
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