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Keywords
- ABPA_Aspergillus
- accompanying diseases
- air-improving devices
- allergy
- animals_pets
- antibiotic therapy
- asthma
- complementary medicine
- covid-19
- diabetes
- diagnostics
- drugs side effects
- drugs under development_genetic therapy
- ENT
- general aspects
- genetics
- health care
- hepatobiliary disease
- hygiene
- i.v.-lines
- inhalation
- lung
- microbiology
- miscellaneous
- modulator therapy
- MRSA
- nutrition and GI problems
- oxygen supplementation_therapy
- physiotherapy
- Pseudomonas aeruginosa
- psychosocial
- public facilities
- recreational activities
- reproduction
- research
- social law
- sport
- swine flu_novel influenza
- transplantation
- travelling
- vaccination
- ventilation
Topics
- Follow-up question on nasal irrigation
- Hello, I understand the problem of tap water potentially being contaminated with bacteria. What do you think about the following alternatives to boiling water: 1) distilled water 2) non-carbonated bottled water Can I use these two alternatives instead of tap water for nasal irrigation or ...
- 13.12.2012
- nasal washing
- Hello, We were advised to wash the nose of our 4 month old CF child every day even if he is not congested. What do you think? Could it cause irritation? Thank you
- 11.12.2012
- Causes of hair loss
- Dear expert team, Since an exacerbation at the end of March 2012, which was probably caused by ABPA, I (25, female, CF) have to take several additional drugs. Around May 2012 I noticed that I am losing decidedly more hair than earlier. I initially blamed the itraconazole I had started taking, ...
- 11.12.2012
- Voice hoarseness
- My child is 3 years old and suffers from CF. For a long time there is a hoarseness in his voice. Does it have anything to do with CF? I blame it on the Airway clearance therapy, or to the fact that he screams a lot. I would like your opinion.
- 15.11.2012
- Immune system and CF
- Hello, in another answer you are writing about "hints from research that confirm a dysfunction of the immune system in CF". What does that mean and which new approaches result from this? Regards, [Comment by ECORN-CF team: This question refers to another question "Flu vaccine as nasal ...
- 15.11.2012
- Nasal irrigation
- Do CF patients still have to use sterile salt water for nasal irrigation? After all, if we boil water for this, it has to cool down for at least 20 minutes; but during this time germs will form again!?!
- 11.09.2012
- Mycosis
- I would like to understand and know why I have freuqently vaginal yeast infections or a lot of vaginal discharge. Is it due to cystic fibrosis ? If yes why and how to avoid it. When I take antibiotics it happens to me, but right now this is not the case. Thank you in advance. Sincerely,
- 11.09.2012
- Rhizarthrosis
- Dear expert team, Due to rhizarthrosis on the left and right side with severe pain and limited in movement, I am supposed to present to a hand surgeon. Previous treatments: brace for immobilization, cast for three weeks (Jan 2012), injections (local anaesthetic), pain therapy: ...
- 16.08.2012
- chronic fatique
- Hello, I'm 34 and I have cystic fibrosis, with a FEV1 of about 40%. I sleep at least 10 hours a night and I often need to recover in the day also. So I spend several days a week to sleep. Fatigue is mutli-factorial and complex, but I wonder if those adults with cystic fibrosis suffer from it often ...
- 11.06.2012
- Keratoconjunctivitis (sicca)
- Dear expert team, I would like to ask you whether there are any treatment options concerning the above diagnosis. I.e., are CF clinics specialized on giving advice? I really suffer from this sicca syndrome (CF patient, 45 years old). I have already tried a lot of different eye drops. My ...
- 18.05.2012