Topics

ABPA and greenwood forest
I would like to ask about a relationship between ABPA and a walking in the greenwood during autumn time. I’ve had CF and last years I‘ve acquired also ABPA treated by prednisolon and anti IgE medication (Xolair). Sometimes when I am walking in the greenwood forest I wake up for dry cough. Is ...
12.01.2009
Arthritis
At about 11 years, my daughter developed a mild form of arthritis in her knee for the first time, which was ignored by doctors initially. It became more and more severe over time, and by now it is particularly bad and occurs in all joints after each i.v. therapy. When she took strong pain killers, ...
12.01.2009
Sinus Problems
I am 19 and have had many sinus surgeries...each time I get sick is due to the post-nasal drip into my lungs causing them to get inflamed and irritated. For the past couple years my sinuses have started bleeding, mostly at night to the point where I will wake up choking on the heavy drainage it ...
12.01.2009
ileostoma
I am from Kosovo.I have a daughter with CF 5 months old. She was born with MI (mekonium ileus) and had her first surgery at two days old,and had ileostoma. Second surgery was done after 4 months but there where some complications so she was operated two more times,So she had three surgeries ...
19.01.2009
Articulation
Is there a link between CF and problems with articulation?
01.12.2008
CF and kidney disease
I would like to know what is known about kidney disease and CF. My daughter of 37 has CF and recently started on dialysis as well. She has a mild form of diabetes, injects 4IU per meal but has serious diabetic complaints. At first it was a mystery; she has been unexplainable very ill.  ...
27.11.2008
joint problems
My 13 year old daughter has CF and since 3 years now can’t stretch her fingers. Her joints are swollen and she has difficulty stretching her arms. Apart from not being able to stretch the fingers they function well. She has been free of severe lung infection for the last few years, but takes ...
04.12.2008
nasal polyps
What about nose polyps and CF?? My 8 year old son has nasal polyps. He had surgery 3 times but these polyps grow back every time
13.11.2008
Pseudomonas
Hi, I am 25 years old and have very severe asthma which is but difficult to be hold at bay with all drugs available (Symbicort, Singulair, Decortin 7,5mg, Sultanol forte for Pari boy...) I permanently have infections and I had three bouts of pneumonia within a bit more of one year. Now an ...
22.12.2008
Pregnancy
I am 32 years old and suffering since my first year of life of an asthma. Now we would like to have a baby, but I have some concerns and want to have it made clear for myself first, as it is me who have to carry the child to full term. For the last 25 years I am taking the following drugs: ...
21.04.2008
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