Topics

Conflicting expert opinions
Dear expert team, does hypertonic saline solution only mobilize more mucus, or can its inhalation also have negative effects, i.e. promote mucus production? There are two conflicting assessments of this in this forum: "After all, with inhalation, one sometimes produces mucus that was not ...
11.12.2012
Voice hoarseness
My child is 3 years old and suffers from CF. For a long time there is a hoarseness in his voice. Does it have anything to do with CF? I blame it on the Airway clearance therapy, or to the fact that he screams a lot. I would like your opinion.
15.11.2012
CF related Liver disease, Lycopene and Vitamin E
Dear Expert, I'm a father to a 7years old boy with CF. Recently, a CF related Liver disease was diagnosed (by ultrasound and elevated liver enzymes in the blood). It was also discovered that his Vitamin E level is higher than normal 33mg/L. Can the high level of Vitamin E affect the Liver ...
30.10.2012
Bronchitol®(mannitol) and ABPA
Hello! I have CF and would like to get a prescription for Bronchitol®(mannitol) in addition to my other drugs. Currently, however, I am being treated with corticosteroids and antimycotics against ABPA. My question: is there any experience with or contradindication for using mannitol in this ...
24.08.2012
Vitamin D3
Hello, Due to a low vitamin D level (17,7ug/l, the recommended value would be 20), my doctor has ordered me (43 years old) to take vitamin D (8 dr.) in addition to the multivitamins I take in the mornings. However, during the time I take the drops, I get cramps in the fingers and toes as well as ...
01.08.2012
Follow-up question: Motilium®
Dear expert team, many thanks for answering so quickly. Because of the colonization with P.a. I take Azithromycin 250mg every other day as long-term therapy. I also inhale Colistin and DNAse. According to your description, it seems one should be careful here and probably pause Azithromycin? S.
29.05.2012
Gallstones with cystic fibrosis
Are they common? What do I have to keep in mind, since I am also currently breastfeeding my baby?
18.05.2012
Motilium® 10 mg tablets
Dear expert team, I (40 years old) have adult CF an suffer from reflux esophagitis as well as small axial hiatal hernia, according to the latest gastrointestinal exam. I have been taking proton pump inhibitors for years (esomeprazole; Pantozol®/pantoprazole; agopton 30mg; earlier also ...
15.05.2012
Lupus and CF – Quensyl®?
Dear expert team, I was diagnosed with an autoimmune disease. However, it is not yet clear whether it is MS (multiple sclerosis) or SLE (systemic lupus erythematosus). My symptoms – persistent joint and muscle pain emerging out of the blue – are probably more in line with lupus, which is ...
08.05.2012
Renal gravel
Dear expert team, my 7-year-old son has CF (F508 homozygous), his current FEV1 is at 88.4% and he is being treated with antibiotics continuously (cephalexin 1000mg and ciprofloxacin 250mg – 3 weeks on/3 weeks off, as well as colistin). We do an i.v. therapy at home once every year, the last ...
08.05.2012
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