Topics

Cayston®
Dear expert team, I inhale for more than one year Cayston® (Aztreonam), as the company indicated 28 days of inhalation, then 28 days pause. My physician in the CF center told me now to inhale Cayston® without pause. Are there any studies, yet, if this could probably lead to an ...
17.12.2013
Tendinitis and Tavanic®/Ciflox®
Hello, I'm a 33 years old CF patient. Since August, I react to Tavanic® (levofloxacin) by tendinitis pain under the foot arch. My intravenous treatments are very infrequent (1 every 2 years). My doctor told me that if I can not support Tavanic®, we will have to consider much more frequent ...
09.12.2013
Drugs/vaccination during pregnancy
Dear team, I am 30 years old, suffer from CF (DeltaF508), have a very good lung condition (FEV1 115%), in exchange I have an insulin-dependent diabetes mellitus. Now I got to know yesterday, that I am pregnant in the 5th week (absolute desired child, husband is not a CF-carrier). Now I ...
18.11.2013
Chloramphenicol in enzyme compounds
[Please note that this question was originally submitted in Germany; both question and answer therefore refer to the German production context of Creon®.] Hello, We just recently learned that our 2.5-year-old son has cystic fibrosis. He had severe pneumonia in the summer and due to the ...
22.10.2013
Side effects?
Hello dear experts, My son (3,5 years old) has had two positive sweat tests; a gene test is still outstanding. We have been given Creon® (pancrelipase) and multivitamins, which I think are quite effective. Since our son has been taking both, he does not want to go to sleep, has become almost ...
13.08.2013
Anti-reflux
Hello. We have a child who has cystic fibrosis and we would like to know if the anti-reflux medications, from a general point of view, were unsuitable for them? I'm not an expert but it seems to me that these drugs are designed with the aim to "stuff" and therefore they could harm the ...
15.07.2013
Pulmozyme®
Hello, we have started Pulmozyme® (rh-DNAse) a few months ago for our child. For me it was an unnecessary treatment because of my child's excellent health status (no secretion and very few antibiotics). I relalize that his condition has deteriorated since. New bacteria have appeared. I have some ...
02.07.2013
Vaccinations for CF children
Each given vaccination contains also mercury, according to my knowledge. Which vaccinations are indispensable for CF children? Which should be avoided due to the burden with mercury?
25.06.2013
Drug
The drug Bretaris Genuair® is given in case of the illness "COPD". Has anybody experience if it is also suitable for CF?
24.06.2013
Azithromycin
Dear Doctors, Yesterday I heard on the news that azithromycin antibiotics will be examined in America because it would be a dangerous drug. Do you know more about it? Because when I get a cure related to my CF, it is usually this antibiotic. (Also diane35® (hormone containing pill use in case of ...
15.05.2013
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