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Keywords
- ABPA_Aspergillus
- accompanying diseases
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Topics
- Pulmozyme®
- Hello, we have started Pulmozyme® (rh-DNAse) a few months ago for our child. For me it was an unnecessary treatment because of my child's excellent health status (no secretion and very few antibiotics). I relalize that his condition has deteriorated since. New bacteria have appeared. I have some ...
- 02.07.2013
- Vaccinations for CF children
- Each given vaccination contains also mercury, according to my knowledge. Which vaccinations are indispensable for CF children? Which should be avoided due to the burden with mercury?
- 25.06.2013
- Drug
- The drug Bretaris Genuair® is given in case of the illness "COPD". Has anybody experience if it is also suitable for CF?
- 24.06.2013
- Azithromycin
- Dear Doctors, Yesterday I heard on the news that azithromycin antibiotics will be examined in America because it would be a dangerous drug. Do you know more about it? Because when I get a cure related to my CF, it is usually this antibiotic. (Also diane35® (hormone containing pill use in case of ...
- 15.05.2013
- ABPA and prednisone
- Dear CF-team, My 12-year-old daughter has CF with ABPA (allergic bronchopulmonary aspergillosis). For that reason she is being treated for several years yet with prednisone. This has a consequence on her growth. She is little for her age and I presume she has to take the prednisone. What are the ...
- 13.05.2013
- Prograf® serum level
- Hello, I have been transplanted with the living-kidney of my wife in 2009, everything went fine. My serum level of Prograf® (substance: tacrolimus) was always around 7 in the last month with 1.5/1.0, now we reduced to 1.0/1.0. I have been on holiday (Tenerife) and got strong cough and took an ...
- 23.04.2013
- CF and RhDNase
- Hello, I have previously read the question and the response on this topic (November 2010, Pr JC Dubus). I am the grandfather of a 6 years and 10 months old CF girl followed-up in a CF centre. Whereas everything was OK and the lungs were clean on the chest X-ray, she started a RhDNase treatment on ...
- 16.04.2013
- Henoch-Schoenlein purpura as reaction to Pulmozyme®?
- Dear experts, our daughter, 9 years old, is in a good general condition. However, she just had a common cold. Her immune system reacted normally, the fever disappeared after one day, then for 2 days increased temperature. She also had a strong cough in the upper area, no bronchitis, the lungs were ...
- 16.04.2013
- Administration of Bronchitol®
- Hello, I tried Bronchitol® (active substance: mannitol) and I am rather content. However, the daily inhalation is very exhausting and time-consuming, as I have to vomit frequently at this due to the disgusting taste. This has not gotten better even after several weeks of usage. I asked in the ...
- 25.03.2013
- Pulmozyme® Abdominal Pain
- When my daughter does her breathing treatment with Pulmozyme® (active agent rhDNAse) she gets bad stomach pain. She doubles over in pain and it is hard to watch. When the Pulmozyme® is done it goes away. This happens every day, and I am just at a loss. She is crying and miserable. We use a ...
- 25.03.2013