Topics

Malnutrition and cystic fibrosis
I am a 45 year-old adult with cystic fibrosis since birth. My weight has always fluctuated between 39 and 42 kg since my teens. Since 1993 I am diabetic and treated with insulin; I have been losing weight for 2 years. With bags of Clinomel® [parenteral feeding soultion] for 1 year, I have gained ...
20.10.2014
Nortase®
Is it possible to use Nortase® in case of a known ABPA and CF? If not, are there alternative preparations? The normal pancreatic enzymes are already given in a very high dosage and seem not to be sufficient, omeprazole is already taken for a longer time. Thank you.
29.09.2014
Removal of the gallbladder and digestion of fat
Hello, I have the following question: in case of a CF patient with a high need of pancreatic enzymes (and in spite of this frequent fatty stools) the gallbladder should be removed because of gall stones. Would this in addition even more restrict the digestion of fat (he is already very ...
29.09.2014
Breast-feeding
Hello, I would like to know why some CF centers do not encourage the breast feeding of the CF babies and propose systematically an enriched milk, while we know the benefits of the maternal milk?
17.09.2014
Kreon® dosage
Dear experts, I have a 4 year and 9 months-old boy diagnosed last year in October 2012 with cystic fibrosis, after he had two sweat tests, the first with the value 98 and the second 58. The sweat test was done because the child had chronic diarrhea for about a year. As a treatment we currently ...
17.09.2014
Dosage of Kreon and side effects
My daughter is 5 years old and suffers from CF. She takes 2500 IU of Kreon per gram fat. We have the impression, that it has become insufficient. She has always a bloated belly, complains lately regularly about abdominal pain. She has fatty stools rarely, however sometimes up to 5 times a day. We ...
30.06.2014
Do MCT-fats still have a justification in the nutritional management of CF?
There are manufacturers, who recommend medium-chain trigycerides, MCT, for patients with CF, like it was common practice in the 80ties of the last century for CF patients, before the micro-encapsuled digestive enzymes came on the market. From a medical point of view, is there still an indication ...
02.06.2014
Puffy belly
Hello, I am a 43 year-old patient with CF. I am now on the waiting list for two new lungs. My lung function fluctuates around 30 %. I do not have liver problems, and in the screening, no complications were found. The only thing I have problems with lately is a very puffy belly. In the evening there ...
02.06.2014
Persistent diarrhea in babies
My 13 month-old baby girl was reported suffering from a moderate form of cystic fibrosis since her 2nd month. She has food allergies and frequent constipation since birth. Stool analysis did not reveal any pancreatic problem, from what I understand. But today, she has diarrhea since a week. Not ...
19.05.2014
Pancreatic atrophy
Hello, the conclusions of the last MRI performed in January 4, 2014 shows = "slight increase of the cystadenoma size with no change of the pseudo solid portion of the pancreatic head, increase in dilatation of the main pancreatic upstream duct and pancreatic atrophy". Elastase value (April 17, ...
19.05.2014
<<  < 1 | 2 | 3 | 4 | 5 | 6 | 7 | 8 | 9 | 10  ...  21 >  >>