Topics

Chronic colonization with Staphylococci
Dear expert team! Request for help for a very worried mother: my daughter (16 years old) had until about one year ago, a very good lung function (97%) and a very good general condition. As she is also an extreme allergic patient, one has the creeping worsening of the lung function not ...
17.12.2014
Carpet and picking mushrooms in the forest
Hello I’d like to know what is better in a room for a child with cystic fibrosis: carpet or linoleum like plastic soil? And I'd would like to know if it's dangerous to pick mushrooms in the forest with the Pseudomonas or other bacteria present in the ground and moisture? Thank you
03.12.2014
Working in the archives
Hello, I found a job that typically involves storing and fetching documents stored in a building and I want to know if there is a risk in terms of dust and moisture possibly due to floods in june 2010? Kind regards,
25.11.2014
Pseudomonas and Aspergillosis
My 19 years old daughter has been recently treated with IV antibiotics for the first time for Pseudomonas primo-infection. At the end of the antibiotic treatment, she was diagnosed with aspergillosis (presumably ABPA) with high IgE levels (1500). After intitiating treatment with oral steroids, IgE ...
25.11.2014
Candida albicans and Aspergillus
Hello, I would like to ask you, how you judge the result of our daughter. Our daughter is nearly 5 years old. At the age of 4 months, she has been diagnosed to suffer from CF. She is doing well and we are very well cared for in our CF center. Until now, throat swabs showed mostly Staph. ...
20.10.2014
Detection of fungi in the throat swab
Dear expert team, our daughter suffers from CF and is now nearly 5 years old. She is doing well and the doctors are very content. The last throat swab detected now Aspergillus and Candida. Looking in the past, she has otherwise mostly Staph. aureus in the swab. As she is doing well, we do not ...
13.10.2014
Lactrase® preparation in case of mould fungus allergy and CF
Hello. I am suffering from CF and lately, a lactose intolerance has been diagnosed. As I am additionally allergic to mould fungi I would like to know, if I can take uncritically Lactrase® preparations, as they are mostly breeded on mould fungi? Many thanks for your efforts, Best regards,
13.10.2014
Nortase®
Is it possible to use Nortase® in case of a known ABPA and CF? If not, are there alternative preparations? The normal pancreatic enzymes are already given in a very high dosage and seem not to be sufficient, omeprazole is already taken for a longer time. Thank you.
29.09.2014
What is the meaning of solid particles in the sputum?
Dear expert team, I (female CF patient with Pseudomonas colonization and asthma) observe for about half a year that I have in the sputum smaller to larger pinpoint particles of deep grey colour. These mostly only come out after a hard, crampy cough and occur every one to two weeks. Can this be a ...
21.08.2014
Airing in the car / air-conditioning bad in case of CF?
Dear expert team! As we do not have a car, my daughter (21 months, CF) is only very rarely sitting in a car. After the last car ride two days ago, however, she was completely horse and had a strong and coated cough. She was then coughing every night very much and woke up therefore regularly. At ...
21.08.2014
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