Topics

Evolution of the illness
Hello I realize a study on CF and I'm missing some information. Is the development of CF slow or rather fast?
08.04.2014
query - carrier
Dear Sirs I sent a question to the cystic fibrosis organisation and they directed me onto you as it was medical question. I have just found out that myself and my sister are carriers of the cystic fibrosis gene only and do not actually have it. I wanted to know if it was true that if you are a ...
08.04.2014
Room Temperature
What is the BEST room temperature for a person with CF?
08.04.2014
Can NaCL infusion help CF patients
Dear Sir/Madam, I am a mother of a child with CF. Maybe my question is stupid as I do not have medical background, but I am wondering can usage of Na Cl infusion through the blood once a week help CF patients in term of bringing salt through the blood into lungs, pancreas, stomack, etc.? This ...
08.04.2014
CARRIER PARENTS
Is it correct , that if one parent is not a carrier of the cf virus so to speak that the child can not possible have cf? and is that 100% correct ?
07.04.2014
Cystic Fibrosis
How does Cystic Fibrosis affect lungs and as a consequence the respiration?
24.03.2014
Living in Athens with CF Recommended ?
I have an 11 year old daughter with CF and we live in Abu Dhabi, UAE, but we may come to live in Athens, I am worried about the air pollution, we will be living in the hills outside Athens. Also Gala has just started to take Ivacaftor as she has the G551 mutation, is this going to be available ...
24.03.2014
Differences between CF Centres
Hello Will there one day be a "consensus" between CF Centers? Indeed through testimonials from parents of CF children it’s noticable that each CF Center allows or prohibits some activities or travel. Opinions may even differ in a given CF Center ... Why has one child the right to go to Tunisia ...
24.03.2014
CF in blood work but no symptoms
About 12 years ago it was found that i had full blown CF according to my bloods but i've never had any symptoms - this was found as i was trying to do egg donation. I am now wondering if this is common or whether it is rare and somebody may be interested in it? Both my parents were then ...
24.03.2014
Aquagenic Wrinkling of Palms
My daughter (5 y.o.; F508del/CFTR dele2,3) seems to have Aquagenic wrinkling of Palms. What does this condition mean? IS it somehow dangerous? Should it be treated?
24.03.2014
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