Topics

Correctors and germs
Dear expert team, supposed one of the new drug combinations e.g. by Vertex would be suited for a correction of the homozygous Fdel508 defect, would encourage the cells to take up their tasks to at least 10% until e.g. 40%, and would result in a similar improvement concerning FEV1 and ...
25.11.2014
He CF - she asthma
Hello, is it a health risk for a CF patient if his/her partner has mild asthma? Does the partner with asthma have to be put on par with the partner with CF?
25.11.2014
Do CF patients sweat more?
Dear expert team, do CF patients sweat demonstrably more than healthy people or is this just a subjective feeling? Many thanks for your answer.
03.11.2014
Prognosis of mutation classes
Dear experts, I am always told that the prognosis for CF patients can never be predicted, that it is very different from patient to patient. It would depend on the genes and also on other factors. This is what I know - but as a parent of a CF child one is of course tortured by the insecurity if ...
20.10.2014
Irritating cough
Hello, since a short period of time I have a strong irritating cough, so that I can hardly breathe in between! I inhale Bronchitol® as well as Tobi®! Probably one can help me further! Many thanks in advance, S.
13.10.2014
Worsening of the lung function
Hello, My daughter has been diagnosed to suffer from CF 2 years ago (she was already 17 years old). After the first shock, we have begun to accept the disase. The medical care was very good and the therapy worked well. Her lung function increased concerning the FEV1 value from 80 to 107 in ...
29.09.2014
Pseudomonas
Dear expert team, our 1-year-old daughter has recently Pseudomonas in her routine throat swab. Therefore she receives an antibiotic treatment. Is a colonization with Pseudomonas at the age of 1 year unuasually early? Do we have to adapt ourselves to a severe course of the lung disease, ...
29.09.2014
CF mutation
Hello, can you explain what does it mean that the F508del mutation of the CFTR gene has been found in my 5.5 year-old daughter, and what are the consequences for her respiratory as well digestive health? Thank you
10.09.2014
CF-contact to baby?
Hello, is a CF patient actually allowed to have direct contact to a newborn? The immue system is indeed maturing only over 4 months...in the concrete case the CF patient is only colonized with Staph. aureus, however did already have Pseudmonas in the past. Many thanks for your answer (the baby ...
18.08.2014
Sweating
Hello, our one-year-old son with CF is sweating for several weeks very strongly at the head, even if he is not too warmly dressed and it is not warm. Especially at night and when inhaling. His hair is often completely sweated wetly. Shall we get this investigated (and if yes, how?) or is it ...
29.07.2014
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