Topics

Newborn screening and sweat test
Dear expert team, my daughter (18 month old) suffers from her 15th week of life on of chronic productive cough of unknown origin. Three weeks after the cough had started at that time, she got a long lasting bronchitis (RSV negative April 2013), that did not resolve. With the inhalation of ...
21.07.2014
Fluimucil® (acetylcystein) and / or other mucolytic drugs
Hello, For children suffering from CF, are Fluimucil® (acetylcystein) or other mucolytic drugs in form of tablets or sirup sensible as long term therapy? Can they liquefy the CF mucus or are they not effective? Many thanks!
14.07.2014
Blood in the sputum
Hello dear expert team, my son is 8-years-old and suffers from CF, he has blood in the sputum since Thursday. On Thursday he has been discharged from hospital after 14 days of i.v. therapy, he had a pneumonia. It happens up to 8 times and sometimes it is streaked with blood and sometimes there ...
08.07.2014
CF and cortisone
Dear expert team, as a CF patient with severe allergic asthma (trees, grasses, fungus spores) I face the problem to be forced to reduce the cortinsone (prednisone 10 mg daily / symbicort 200® (budesonide and formoterol) 3puffs 3 times daily) that I take for 10 years, due to recurrent ...
08.07.2014
Can CF also occur without pulmonary symptoms?
Dear Sir/Madam, My son (3 years and 3 months) is currently being tested for CF. He had a sweat test, but unfortunately the test failed because he didn’t produce enough sweat. However, I do not think my son has CF because he has no pulmonary symptoms. He has upper respiratory infections (with ...
08.07.2014
Pulmozyme® 2 times daily more effective?
Dear expert team, my daughter (nearly 2 years old) inhales for some time once daily with Pulmozyme® (rh-DNAse) in the mornings, before this and in the evenings with hypertonic saline 3% with 7 drops salbutamol. She has an impaired ventilation of the right upper part of the lung (near the ...
02.06.2014
Better lung function
Hello, I am suffering from CF and for one week I am doing with a lung trainer 10 minutes breathing exercises daily. Conclusion after one week: the FEV1 value has improved 7 points. My question is, how far can one train the lung in order to achieve a "normal lung function" again in the frame of ...
02.06.2014
Achromobacter and Colifin®
I am 48 years old. In November 2013, Achromobacter has for the first time be found in my sputum and also Pseudomonas, the latter for the third time (always with large year-intervals inbetween). My lung function value FEV1 was always in the range of 55-57%. Unfortunately, from February 2013 on, I ...
30.04.2014
Cystic Fibrosis
How does Cystic Fibrosis affect lungs and as a consequence the respiration?
24.03.2014
Bronchiectasis
My 14 year old son with CF was just told he has Bronchiectasis; is it reversible? The drs aren't doing anything about it?
24.03.2014
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