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Keywords
- ABPA_Aspergillus
- accompanying diseases
- air-improving devices
- allergy
- animals_pets
- antibiotic therapy
- asthma
- complementary medicine
- covid-19
- diabetes
- diagnostics
- drugs side effects
- drugs under development_genetic therapy
- ENT
- general aspects
- genetics
- health care
- hepatobiliary disease
- hygiene
- i.v.-lines
- inhalation
- lung
- microbiology
- miscellaneous
- modulator therapy
- MRSA
- nutrition and GI problems
- oxygen supplementation_therapy
- physiotherapy
- Pseudomonas aeruginosa
- psychosocial
- public facilities
- recreational activities
- reproduction
- research
- social law
- sport
- swine flu_novel influenza
- transplantation
- travelling
- vaccination
- ventilation
Topics
- IV worsening of the saturation
- Dear team! I am suffering from CF and I am 48 years old. Since I was 25, I do regularly about 2 times a year an iv-therapy. Unfortunately, it is often like this, that the lung function stays the same, however the oyxgen saturation is going to be worse and worse at the end. I have however not the ...
- 17.12.2014
- Rhinitis and antibiotics
- Hello, my 3-year-old son with CF has a rhinitis for 4 or 5 days; since yesterday, cough became productive, while the nose dries. He also began yesterday to inhale with Pulmozyme® (rh-DNAse). During the physiotherapy session yesterday, the physiotherapist got a little sputum, but from nose, not ...
- 10.12.2014
- Cystic fibrosis and cigarettes
- Hello, I am a mother of a 15-year-old teenager who has cystic fibrosis. I have just learned this morning that last week, she smoked two cigarettes. I wanted to know what can be the consequences of her gesture. I am enormously put under stress. Thank you for your answer
- 10.12.2014
- Staphylococcus aureus
- Hello, We got to know one month after the birth of our now 3-months-old daughter that she was suffering from CF. She carries the DF508 and G3272-26A mutations. She is followed every month at the CF Center. She has every day respiratory physiotherapy and is until now pancreatic sufficient. My ...
- 04.11.2014
- FEV1 value
- Hello, I (CF, 39-years-old) would like to know up to which value the FEV1 value is in the normal range. My FEV1 value is at the 50% mark. Regards, E.
- 03.11.2014
- CT scan of the lungs appropriate?
- Hello, many thanks for your help in advance! Age: 36, male, in the frame of a genetic investigation at a center for reproductive medicine a genetic defect has been detected (before history of hypozoospermia, infertility diagnostics in case of CFTR-related disorder). Bronchial asthma, allergic ...
- 29.09.2014
- Worsening of the lung function
- Hello, My daughter has been diagnosed to suffer from CF 2 years ago (she was already 17 years old). After the first shock, we have begun to accept the disase. The medical care was very good and the therapy worked well. Her lung function increased concerning the FEV1 value from 80 to 107 in ...
- 29.09.2014
- What is the meaning of solid particles in the sputum?
- Dear expert team, I (female CF patient with Pseudomonas colonization and asthma) observe for about half a year that I have in the sputum smaller to larger pinpoint particles of deep grey colour. These mostly only come out after a hard, crampy cough and occur every one to two weeks. Can this be a ...
- 21.08.2014
- Cystic fibrosis?
- Dear experts, I (28, female) suffer for years from mucus in the lungs, thorat, nose. Reflux has been excluded, lung has been investigated, no allergies, nose has been investigated without result. For a longer time digestive problems. Especially the mucus in the throat is disturbing as I have to ...
- 28.07.2014
- Leukocytes
- Hello, my daughter, 11-years-old, suffers from CF and has for a few months much more mucus. The last three sputum samples were free of germs. However, our doctor asks all the time, if it had been a real good sputum. I always pay attention to the fact, that there is really mucus in it and not only ...
- 28.07.2014