Topics

mutation delF508 / R553X
My son (8 years old) suffers for years from gastrointestinal problems. For him as a CF patient, lung problems are not the main focus. He has already had an ileus 2 times (as a consequence resection of 50 cm of the gut), furthermore an exocrine pancreatic insufficiency, an enlargement of the spleen ...
28.04.2014
Lung after DLTX (double-lung transplantation)
Dear expert team, in case a CF patient has had a lung transplantation, is and stays the lung "free of CF" then? That means: does it not congest with mucus anymore? Or does one have to go on with physiotherapy and inhale mucolytic drugs? Many thanks!
17.02.2014
Life expectancy after lung transplantation
Hello, I would like to know, what is the life expectancy after a lung transplant? The transplant was done about fifteen years ago. Thank you.
30.09.2013
Contact with a lung transplant recipient
Hello, the husband of my son’s future nanny has undergone lung transplantation. Is there a risk of transmission of infection between these 2 persons? My son is colonized by Staphylococcus aureus; is this dangerous for the nanny’s husband? And if some day my son will be colonized by ...
26.09.2013
Transplantation
Hello, What are the risks of lung-liver transplantation for a CF patient? How is life expectancy increased by this? How much time? What are the risks of rejection?
07.10.2013
Swimming after lung transplantation
Hello, I would like to know if and when one can go swimming after a double-lung transplantation. In an outdoor swimming pool / lake / indoor swimming pool? And where is the problem in general? Thank you!
24.07.2013
Transplantation
Hello, A friend (24 years) will get liver and lung transplantation. I would like to know his survival chances. What are the risks? And in the long runs?
02.07.2013
Anato-pathology
Hello, I apologize for this very dark question. If they expressed this wish or agreement during their lifetime (we always say that we can "leave our body to science?"), are dead CF patients sometimes autopsied? Not for the forensic pathology, but for advanced knowledge by examining the lungs, the ...
05.06.2013
Alcohol
Hello, Can a person with CF drink alcohol? And if not why? Thank you.
05.06.2013
Transplantation and horse-riding
Can one pursue horse-riding after lung transplantation ?
29.05.2013
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