Topics

Inhaled salmeterol/fluticasone (Seretide®)
Hello, I would know something about the intention to inhale salmeterol/fluticasone (Seretide 50®) each day, even when the child is not secreting. Thanks very much.
29.09.2014
Tobramycin inhalation
Hello, is there any information if tobramycin inhalation during early pregnancy can be harmful for the baby? We have to inhale tobramycin twice a day with our 2-year-old CF daughter and we ask ourselves if the vapours that we share by sitting next to her could harm the unborn. Many thanks
29.09.2014
Colistin
Hello, my 11-year-old daughter daily inhales colistin aerosols delivered via an e-Flow. My MD has informed me about a dry powder form of colistin in capsules as it exists for tobramycin. I would know when the dry powder colistin will be available in France. Thanks very much for your responses.
22.09.2014
Pseudomonas in the nasal lavage
Dear expert team, First of all many thanks for your efforts. As a partner of a CF patient I am already for a longer time silent reader of your expert advice. Now I would like to pose a question for the first time. In the nasal lavage of my wife (CF, 31 years old, FEV1 85%) Pseudomonas had been ...
21.08.2014
Kreon® dosage
Dear experts, I have a 4 year and 9 months-old boy diagnosed last year in October 2012 with cystic fibrosis, after he had two sweat tests, the first with the value 98 and the second 58. The sweat test was done because the child had chronic diarrhea for about a year. As a treatment we currently ...
17.09.2014
Headache due to Ventolin® (salbutamol)?
Hello, our 7-year-old daughter suffers for about 3 months regularly about 3 hours after the inhalation in the mornings of 3-4 puffs Ventolin® (salbutamol aerosol) and 6% NaCl from partly very strong haedache. An EEG and further investigations have been without pathological findings. Could this ...
28.07.2014
Cayston®
I’ve heard (by a service provider) about a new molecule named “Cayston®” that is used to treat CF adultes againt Pseudomonas aeruginosa. This molecule would be used with a new machine that will arrive on the market (or already has?). This person could not tell me more. I turn to you in order ...
14.07.2014
Inhalation with salbutamol
Hello, I have 2 questions on this topic... 1. How becomes the inhalation with salbutamol the most effecitve? To mix the drops with NaCl/Mucoclear® (hypertonic saline) and inhale with Pariboy or Eflow or to inhale salbutamol with the Vortex® chamber (about 20 minutes) before the inhalation of ...
09.07.2014
Fluimucil® (acetylcystein) and / or other mucolytic drugs
Hello, For children suffering from CF, are Fluimucil® (acetylcystein) or other mucolytic drugs in form of tablets or sirup sensible as long term therapy? Can they liquefy the CF mucus or are they not effective? Many thanks!
14.07.2014
CF and cortisone
Dear expert team, as a CF patient with severe allergic asthma (trees, grasses, fungus spores) I face the problem to be forced to reduce the cortinsone (prednisone 10 mg daily / symbicort 200® (budesonide and formoterol) 3puffs 3 times daily) that I take for 10 years, due to recurrent ...
08.07.2014
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