Topics

Can the diagnose change?
Hello, in the year 2008, two sweat tests of my at that time 5-year-old daughter were 59 and 78. After this, there were two further sweat tests at a university hospital with the values 26 and 12. The measurement of the elastase in the stool was 638 and 629 as double measurement. Therefore the ...
13.10.2014
Diagnosis of CF?
I am 54 years old. I suffer for about 12 years from the following chronic diseases without a detectable reason: pancreatitis, diarrhea, sinusitis and frequent infections like bronchitis, and atypical pneumonias. Even in case of severe cough I cannot cough it up. Two years ago bronchiectases had ...
06.10.2014
CT scan of the lungs appropriate?
Hello, many thanks for your help in advance! Age: 36, male, in the frame of a genetic investigation at a center for reproductive medicine a genetic defect has been detected (before history of hypozoospermia, infertility diagnostics in case of CFTR-related disorder). Bronchial asthma, allergic ...
29.09.2014
Oral intake & Sweat Test result
Dear Sir / Ma'am, I have had the following email sent to the email part of our Helpline and I wouldered if someone knows the answer: - "Hi- This may be a strange question- Is there any information as to whether certain medications, supplements, or a diet with too much salt can cause a ...
22.09.2014
ISET method
Hello I have already read, with attention, the last answer regarding the subject [http://ecorn-cf.eu/index.php?id=65&L=8&tx_expertadvice_pi1%5Bshowitem%5D=2804&tx_expertadvice_pi1%5Bsearch%5D=ISET], but I want to know if there a place in France where this test can be performed? Otherwise, do you ...
15.09.2014
Suspicion of CF
Hello on your site again, Still with not that many answers to my questions regarding the diagnosis of my child who is now 15 years old. I'd like your opinion, my son is pancreatic insufficient, so he takes Creon. He had 3 sweat tests all positive, but the genetic test is negative!! He has a ...
15.09.2014
Worry
My little one is 4 years old, again and again bronchitis. She has had the medical check-up U8 yesterday and has underweight 96cm and 12,5 kg. She is sweating a lot, the stool colour is light... the pediatrician means she is not a CF child however if one reads about the symptoms then I start to ...
21.08.2014
Test for Cystic Fibrosis
Hello, my question: is the test for CF available in Paraguay? Best regards, Mrs. S.
18.08.2014
Sweat test
If the sweat test is negative, does it means that I am a cystic fibrosis carrier?
29.07.2014
Result of ionotophoresis (sweat test)
I have a 13 year and 9 months old child. He had the first iontophoresis test and the result was 78 mmol / l NaCl, but he was in treatment with nebulized fluticasone fl/2/day. In November 2013 the sweat test was repeated, one month after he ended the treatment with aerosols and the result was 36 ...
28.07.2014
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