Topics

intravenous antibiotic treatment /home
Hi,I am from Hungary and my sister has CF. She is 19 now. She has been doing well but just this week it was considered that after the 21 days tobramicyn treatment she has too much mucus. She can not breath poperly probably due to bronchial problems / may be bronchiectasis (never before). She has ...
08.04.2014
Moving to the USA
Hello, I am 30 years old, I am a School teacher and I would like to teach in the USA. I will be in the status of expatriates or I'll be sent for national education. How will my health care be supported there? What should I do for my care is fully supported? Thank you in advance for your ...
24.03.2014
Differences between CF Centres
Hello Will there one day be a "consensus" between CF Centers? Indeed through testimonials from parents of CF children it’s noticable that each CF Center allows or prohibits some activities or travel. Opinions may even differ in a given CF Center ... Why has one child the right to go to Tunisia ...
24.03.2014
Ultrasonic tooth brush?
Dear expert team, our son (15) has constantly tenacious dental plaque. The dentist recommended an electirc ultrasonic toothbrush to him. Are there any concerns about this, can one eventually use it with boiled or sterile water? Many thanks in advance for your advice.
24.02.2014
Oxygen supply of the lung
My 7-year-old daughter is under medical treatment in Spain since her 3rd month of life. She is suffering from CF and has now a lung volume of 35%. A transplantation is urgently necessary. For 10 month we have liquid oxygen for breathing via nasal tube at home. The physicians have NEVER offered this ...
24.02.2014
Living in the United States of America
Hello, I am 17 and I have Cystic Fibrosis. I wish in the near future to live in the United States of America but I do not know how this great country treats people with Cystic Fibrosis. Are there CF specialized centres? Thank you in advance;-)
10.02.2014
Caries
Dear experts, my son (5 years, CF patient) has caries for the first time, at an early stage. In spite of the former detailed talks with the treating dentist about the illness, as well as about the specialties of the dental treatment in CF patients, the lady immediately does not want to take any ...
10.02.2014
hygiene
Hello, I recently started working with patients with cystic fibrosis. I search all the recommendations on hygiene validated by recent studies. There are two recommendations on the website of Roscoff [France], dated in March 2004, including one for patients and one for professionals. Are these ...
03.02.2014
School
hello, My son will be soon in school and I have a lot of questions. Could school refuse or reject the rules of hygiene or refuse to give pancreatic enzymes? My CF center is against the establishment of a Mobility & Living Aid but I am very anxious for meals in the canteen. Can we have a Mobility & ...
27.01.2014
Life in Quebec
Hello, I would like to know how it works when we moved to Quebec regarding doctor, health insurance ... Thank you in advance
23.12.2013
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