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Keywords
- ABPA_Aspergillus
- accompanying diseases
- air-improving devices
- allergy
- animals_pets
- antibiotic therapy
- asthma
- complementary medicine
- covid-19
- diabetes
- diagnostics
- drugs side effects
- drugs under development_genetic therapy
- ENT
- general aspects
- genetics
- health care
- hepatobiliary disease
- hygiene
- i.v.-lines
- inhalation
- lung
- microbiology
- miscellaneous
- modulator therapy
- MRSA
- nutrition and GI problems
- oxygen supplementation_therapy
- physiotherapy
- Pseudomonas aeruginosa
- psychosocial
- public facilities
- recreational activities
- reproduction
- research
- social law
- sport
- swine flu_novel influenza
- transplantation
- travelling
- vaccination
- ventilation
Topics
- intravenous antibiotic treatment /home
- Hi,I am from Hungary and my sister has CF. She is 19 now. She has been doing well but just this week it was considered that after the 21 days tobramicyn treatment she has too much mucus. She can not breath poperly probably due to bronchial problems / may be bronchiectasis (never before). She has ...
- 08.04.2014
- Moving to the USA
- Hello, I am 30 years old, I am a School teacher and I would like to teach in the USA. I will be in the status of expatriates or I'll be sent for national education. How will my health care be supported there? What should I do for my care is fully supported? Thank you in advance for your ...
- 24.03.2014
- Differences between CF Centres
- Hello Will there one day be a "consensus" between CF Centers? Indeed through testimonials from parents of CF children it’s noticable that each CF Center allows or prohibits some activities or travel. Opinions may even differ in a given CF Center ... Why has one child the right to go to Tunisia ...
- 24.03.2014
- Ultrasonic tooth brush?
- Dear expert team, our son (15) has constantly tenacious dental plaque. The dentist recommended an electirc ultrasonic toothbrush to him. Are there any concerns about this, can one eventually use it with boiled or sterile water? Many thanks in advance for your advice.
- 24.02.2014
- Oxygen supply of the lung
- My 7-year-old daughter is under medical treatment in Spain since her 3rd month of life. She is suffering from CF and has now a lung volume of 35%. A transplantation is urgently necessary. For 10 month we have liquid oxygen for breathing via nasal tube at home. The physicians have NEVER offered this ...
- 24.02.2014
- Living in the United States of America
- Hello, I am 17 and I have Cystic Fibrosis. I wish in the near future to live in the United States of America but I do not know how this great country treats people with Cystic Fibrosis. Are there CF specialized centres? Thank you in advance;-)
- 10.02.2014
- Caries
- Dear experts, my son (5 years, CF patient) has caries for the first time, at an early stage. In spite of the former detailed talks with the treating dentist about the illness, as well as about the specialties of the dental treatment in CF patients, the lady immediately does not want to take any ...
- 10.02.2014
- hygiene
- Hello, I recently started working with patients with cystic fibrosis. I search all the recommendations on hygiene validated by recent studies. There are two recommendations on the website of Roscoff [France], dated in March 2004, including one for patients and one for professionals. Are these ...
- 03.02.2014
- School
- hello, My son will be soon in school and I have a lot of questions. Could school refuse or reject the rules of hygiene or refuse to give pancreatic enzymes? My CF center is against the establishment of a Mobility & Living Aid but I am very anxious for meals in the canteen. Can we have a Mobility & ...
- 27.01.2014
- Life in Quebec
- Hello, I would like to know how it works when we moved to Quebec regarding doctor, health insurance ... Thank you in advance
- 23.12.2013