Topics

Swimming pool
I have a question about the warmth of pool water. I'm not allowed to go to Center Parks because the water is too hot. In Knokke-Heist a new swimming pool has opened. The water in the pool is 30° C. Is it healthy to swim in the pool or should I stay out of it?
04.11.2014
Burden with germs
Dear ECORN team, I would have a rather uncommon question. I am writing a seminar paper on the topic "problematic germs in case of CF" and would like to write something about the occurrence on a percentage basis of three different germs. It deals with the following germs: Pseudomonas ...
20.10.2014
4MRGN and regular i.v. therapie
Hello, for about one and a half years besides a "normal" Pseudomonas aeruginosa also a 4MRGN is detected in my sputum. According to the lab, it is though still sensible to 1 or 2 antbiotics. My question is now, if regular i.v. therapies (like they are desired by the treating physician) make sense ...
20.10.2014
Grommets (tympanic tubes) yes or no?
Hello, Our 4-year-old daughter suffers from CF! She has an impairment of hearing caused by mucus behind the ear (probably due to a precedent otitis media)! At first, we were told to wait and have a control after 3 months, if the finding will not improve: grommets…. Now we have 2 opinions, ...
06.10.2014
Pseudomonas
Dear expert team, our 1-year-old daughter has recently Pseudomonas in her routine throat swab. Therefore she receives an antibiotic treatment. Is a colonization with Pseudomonas at the age of 1 year unuasually early? Do we have to adapt ourselves to a severe course of the lung disease, ...
29.09.2014
Stagnant water
Hello, What do you really mean by stagnant water? What should we really be aware of? Thank you
08.09.2014
Puddles and mud
Hello, My 6-year-old son loves to ride a bike in the woods in puddles of muddy water. Is it dangerous for him? Can he play outside, the days following rain? Could we let him play on wet toboggans? Play football? Thank you.
08.09.2014
Towels
Hello, I have noted the need to wash our child’s towels after swimming but when we go on holiday, it is difficult to take 15 towels ... can we use the towel again if it was well dried? If we put it in the sun for example? Can we use two towels and alternate? And for the bath towel at the ...
08.09.2014
Pseudomonas in the nasal lavage
Dear expert team, First of all many thanks for your efforts. As a partner of a CF patient I am already for a longer time silent reader of your expert advice. Now I would like to pose a question for the first time. In the nasal lavage of my wife (CF, 31 years old, FEV1 85%) Pseudomonas had been ...
21.08.2014
Hygiene
Hello is there a consensus showing that hygiene (particularly in relation to sponges, toilet, standing water in general) have reduced colonization with Pseudomonas aeruginosa? In other words, before, we didn't advise so many things regarding stagnant water. Were the patients earlier ...
29.07.2014
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