Topics

Pregnancy and CF
I am a CF patient, 36 years old and turning 37 in April, married and already have two children (12 and 8 years old). Now it “happened” again: I am pregnant again. If I were healthy, I would be very happy, but I have CF. Last year I was in very bad health after a severe lung bleeding, but I ...
14.05.2012
Male with cbavd, woman no abnormalities on the CFTR gene. What are the consequences?
Because we wanted to start a family, but no children came, we went to a fertility centre. Tests revealed that there was no sperm in the ejaculate. Further tests revealed absence of the vas deferens and small seminal vesicles. Genetic tests revealed an abnormality in the CFTR gene. I am 33 years ...
08.05.2012
CF yes or no?
Dear, I am a 35-year old man. Because we had problems starting a family, I had tests done. I seem to have F508del and R117H in combination with 7T/gT. Whether I do have a vas deferens? Different answer by different urologists, from ‘not present’ to ‘one sided absence’. In any case, I do ...
03.05.2012
Menopause and hormone replacement therapy in CF
Hello, Which modifications of the disease can menopause cause (I am 53 years old)? Would a hormone replacement therapy have positive or negative effects?
02.05.2012
Getting pregnant with CF -2-
Hello, 1. I would like to know, since you keep hearing different things about this, whether it is true that women with CF show a decline in lung function which they cannot recover due to a pregnancy. 2. Which type of sports should one do during pregnancy and how often in order to keep the lungs ...
22.03.2012
amniocentesis
Hello, I had a son diagnosed with CF (homozygot delta F508). If we decide to have another child, will the amniocentesis test all the chromosomes or just the chromosome responsible for CF. Is it possible that we, the parents, might have other mutations besides deltaF508? How many mutations exist in ...
22.03.2012
Becoming a father with Cystic Fibrosis
Dear expert team, My boyfriend has cystic fibrosis. F508 homozygous. We would love to have a baby. A gene test showed that I am not a carrier. My boyfriend has had his semen tested by a urologist twice, and both times it was very little and no sperms were detectable. My question: can I stop ...
28.02.2012
IVF and Cystic Fibrosis
Dear expert team, I have had cystic fibrosis and diabetes for 29 years, and also chronic staphylococcus colonization (no MRSA). Since my husband and I cannot have children, we chose the path of artificial insemination (in vitro fertilizatin, IVF). Before the hormone treatment I had ...
28.02.2012
Cystic fibrosis and estrogen
My doctor suggested I take an oral contraceptive containing estrogen and progesterone to treat a rebel acne. Is it contraindicated to take estrogen and progesterone whith cystic fibrosis? Is there an increased risk of diabetes? Thank you
27.02.2012
Getting pregnant, advice needed urgently
Hello, I have been trying to find an answer to my question in this forum, but the problem seems to be different for everyone. I am about 22 years old and had surgery for intestinal obstruction at three days, right after my birth. My course was actually ok, until I simply stopped inhalation ...
14.02.2012
<<  < 3 | 4 | 5 | 6 | 7 | 8 | 9 | 10 | 11 | 12 | 13 | 14 | 15 | 16 >  >>