Topics

Greasy and smelly stools
Why do people with CF have stools that look greasy and smell badly?
24.11.2008
Baby does not gain weight (is completely breastfeeded)
Dear expert team! My son (4 months old, CF) has hardly ever gained weight since weeks. The diagnosis was made when he was 5 weeks old and the therapy was started right away. From that point of time he gained weight to our satisfaction. When he was 2 months old he had an apparently ...
17.11.2008
Resorption of vitamins
Dear Sir or Madam, due to diverse deficiency symptoms I take several mineral and vitamin supplements. However, apparently these are not absorbed by the body since the deficiencies – according to the blood count – do not change at all…! (selenium deficiency, vitamins H, E, D, K, magnesium ...
20.11.2008
cystic fibrosis
Hello! We have a granddaughter who was born on 27-04-2008 and was diagnosed with this disease. She was operated and she has an ileostoma, soon a reintegration of intestine will be done. What chances has this child?
21.07.2008
about vit K
My child 3 years old has CF form birth. He uses fat soluble vitamins. What about vit K?
04.06.2008
Distented stomach
My daughter is 2 years old and was born with a meconium ileus. Therefore the diagnosis of CF was made very quickly. She has had an artificial anus that has been reposed. Since then she suffers from an extremely distended abdomen, in the ultrasound you see very very much air in the stomach and ...
08.07.2008
Atypical CF
I would like to ask: Since September my daughter has constantly been sick. She has an increased temperature, headaches, sore throat, stomach pain and frequent diarrhea. She has an atypical CF. Our pediatrician has said that she always has some virus and has prescribed her Stoptussin against the ...
23.04.2008
vitamin k
I like to know what do you believe about taking vit k. Some doctors said to us not to take it, others to take it for osteoporosis. My daughter is 19 years old.
21.04.2008
Tube feeding in Cystic Fibrosis
Hello, we have a 9-year-old son suffering from CF. He has been quite malnourished for a long time. Now, a tube shall be inserted going from the outside into the stomach (percutaneous endoscopic gastrostomie, PEG). Can somebody with experience tell me the advantages and disadvantages for patients ...
26.10.2007
Inadequate weight gain in Cystic Fibrosis
Hello, Cystic Fibrosis has been diagnosed to our daughter (9 months old at present) at the age of 3 months. Since then we tried a lot of therapeutical options as her weight gain is inadequate, in spite of the fact that she is taking pancreatic enzymes, 30mg taurin and for the last 7 weeks ...
31.10.2007
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