Topics

Result of sputum investigation
Today I got the result of my sputum investigation. For 6 months, I have not taken any antibiotics, either orally nor inhalative or i.v.. In spite of this it is written there, that antibacterial inhibitory substances were present. How can this be?
05.08.2016
Changes of symptomes via antibiotics
Hello, I take for one week ciprofloxacin and cefuroxim due to a worsening of the cough and increased inflammation values. Now it is like this, that the cough has gotten much better, also I have no problems with breathing, however there are still quite viscous secretions present. Furthermore I ...
05.08.2016
Stenotrophomonas maltophilia
What does the finding of Stenotrophomonas maltophilia mean for me as a CF patient? Is there anything to take into account concerning meetings with other CF patients or events other CF patients take part in?
25.07.2016
Quinsair®
Hello, could I get some information about Quinsair® (inhalation of levofloxacin)? Since when it is on the market, how, where and when is can/should be used? Best regards,
25.07.2016
Blood in the sputum
Dear expert team, Pseudomonas aeruginosa has been found in my sputum. Already a few months ago, I did inhalations with Colistin (2 x 1 Mio). I tolerated the inhalations well. The health condition improved. As Pseudomonas has soon been found again, we decided to do a 3 months eradication therapy ...
04.07.2016
Mycobacterium intracellulare in the CF sputum
Hello dear expert team, in my sputum (I am nearly 30 years old) Mycobactrium intracellulare has been detected last December for the first time. Since then this bacterium could be found in 2 further tests, so that I can assume a chronic infection. As I have been at another CF Center before and to ...
04.07.2016
Contraception
Hello, I am carrying the F508del, I am 21 years old I am diabetic and I have a thyroid dysfunction (hypo) and I take the pill "leeloo®". I saw several articles on the need to focus most heavily dosed ethinylestradiol pills. Concrening CF articles I see the opposite. What is that about? In ...
20.06.2016
Fever in a 11-months-old child
Dear expert team, My daughter is 11 months old and has been diagnosed a few weeks ago. Now she has slight fever (37,8°C)…when shall I present her at the CF center? What should I do now? Many thanks! S.S.
13.05.2016
Childhood diseases
Hello, My 3.5-year-old son started school in September and since he had 5 ear infections, laryngitis, some colds, a little bronchitis, gastro ... his cough occurs almost daily (with ups and downs, sometimes the day, sometimes the night, sometimes all the time ...). How can we know if he is ...
08.04.2016
Enterobacter chloacae and Serratia marcescenz and S. liquefaciens
Dear expert team, I suffer from CF and I am Pseudomonas negative and have again and again the above mentioned germs in the sputum. Where can one get those bacteria from, they are intestinal germs, aren’t they? The FEV1 value is stable, however I cough more and have difficulties in bringing up ...
27.02.2016
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