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Keywords
- ABPA_Aspergillus
- accompanying diseases
- air-improving devices
- allergy
- animals_pets
- antibiotic therapy
- asthma
- complementary medicine
- covid-19
- diabetes
- diagnostics
- drugs side effects
- drugs under development_genetic therapy
- ENT
- general aspects
- genetics
- health care
- hepatobiliary disease
- hygiene
- i.v.-lines
- inhalation
- lung
- microbiology
- miscellaneous
- modulator therapy
- MRSA
- nutrition and GI problems
- oxygen supplementation_therapy
- physiotherapy
- Pseudomonas aeruginosa
- psychosocial
- public facilities
- recreational activities
- reproduction
- research
- social law
- sport
- swine flu_novel influenza
- transplantation
- travelling
- vaccination
- ventilation
Topics
- Training to perform intravenous antibiotic treatment - traning for care for relatives
- My husband has CF. It's more and more difficult to find nurses who agree to stay at home during the time intravenous antibiotics are given. I would like to receive training and be allowed to prepare and perform the intravenous antibiotics. Could you tell me if this kind of training exists and if ...
- 19.06.2013
- chiropractor
- My granddaughter is 5 years old. Can a chiropractor help her? She is having breathing problems. She has had 3 visits in the hospital in the last 7 months with low O2 stats.
- 13.05.2013
- Treatment of CF in Paraguay
- Is there any caring CF-center in Paraguay?
- 10.05.2013
- Permanent brace, loose brace or better no one at all?
- Hello, I am a dentist and I am working in an orthodontist's office. We are treating at the moment a patient with CF (12-years old). Oral hygiene is not optimal but she wants absolutely to have her teeth done. Our question would be if we would do harm to the patient with a loose or permanent brace ...
- 19.04.2013
- reimbursement of care in England
- My 16 year-old daughter will visit England for two weeks. According to the organizers, reimbursements with European health insurance card pertain only for health care provided by a physician but not for a physiotherapist. Could you confirm this?
- 16.04.2013
- Trip to England
- Is there an equivalent association for "Vaincre La Mucoviscidose" (the french CF association) in England?
- 16.04.2013
- systematic sputum / cough swab culture
- Hello, The CF centre of my daughter does not practice cough swab systematically at each visit. We are afraid of missing out a bacterium that could worsen the health of our daughter. We are in February and the last culture was done in September. Can I ask them to do it consistently? Can a local ...
- 04.03.2013
- Relation Physician / Patient
- Why so many patients need a website like this one to get answers to their concerns, their issues, their anxieties? I myself have asked you a question: you answered perfectly. I just regret that no more doctors are not very available to listen to patients. THANK YOU ALL
- 04.03.2013
- Individualized education plan (IEP) at school
- Hello. My daughter starts school in September. I've asked the CF centre following my daughter if it was possible to make an IEP with them. They replied that there were no need to write one and a certificate for medicines and prescriptions would be sufficient. I'm a little stressed by this ...
- 28.02.2013
- Move to France from UK with a 2.5 yr old with CF
- My son has CF, with two copies of deltaF508. He has excellent health care in the UK and remains well, despite culturing pseudomonas 3 times in his first 18 months. Now my husband has had a good job offer in the South of France and wants us all to go. What would our position be with regard to ...
- 26.02.2013