Topics

Operation indication for hypertrophic adenoids
Dear expert team, my daughter is 21 months old and suffers from CF. For a few weeks she has an impaired breathing through the nose and because of this especially at night after the bottle cough attacks until she has to vomit. Therefore, she had last week a flexible endoscopy at the ENT ...
06.02.2017
Brushing your teeth
Hello, I'm going to be two years old and I'm starting to be interested in toothbrushes, but as I have CF, I wonder if it's necessary to use mineral water to wet the brush, rinse the mouth and rinse the brush? It makes a lot of mineral water in this case...
20.01.2017
Ferritin
Hello, I (female, 39 years old, CF, chronic Pseudomonas) suffered for a longer time from iron deficiency (ferritin below 10) with partly anemia. As the physical symptoms (exhaustion after minimal efforts, fatigue, pain in the neck) got worse and worse, I decided together with my general ...
16.01.2017
Positve antibodies to Pseudomonas aeruginosa
My son, 14 years old, was diagnosed in August of being positive for antibodies (against Pseudomonas aeruginosa). Sputum has been always negative so far. He was treated with Ciprofloxacin and Colistine. When should we check the antibodies again? I am not sure what to do as I have received very ...
20.01.2017
Pseudomonas in gingival sulci
Hello, in the answer from Dr. Mainz about the sinu-nasal inhalation I read about the possibility of the persistance of Pseudomonas in gingival sulci. I have indeed a bad dental status and also some dental crowns made of synthetic material. Now I would like to adress this topic urgently, in order ...
16.12.2016
Under which circumstances is Pseudomonas turning to be mucoid?
Hello, my daughter, CF, 8 years old, has had in February 2015 for the first time Pseudomonas aeruginosa. Two cycles of tobramycin per inhalation followed, in the third cycle in combination with ciprofloxacin, after 3-6months PA could be again and again found. Then three i.v. therapies followed ...
05.12.2016
Swimming
Hello dear expert team, My grandson who is living in France (2.5 years old, CF) is very well followed up in the CF center in Lille and he is doing really find---he thrives very well. He is very active, has three times a week physiotherapy and does not show any lung symptoms. He did not have ...
05.12.2016
Pseudomonas aeruginosa and sterilization of the nebulizer
We are parents who want to know when to sterilize nebulizers ? Just before the use? Or after using and letting dry on a paper towel without active drying, in a dry and clean box? Is pseudomonas transmitted via the air? When is the best time to sterilize? Before or after using? Thank you for ...
25.11.2016
Kissing
Hello, I am now 17 years old and suffer from CF. I have fallen in love and we are just ahead giving each other a kiss for the first time. I never had a boyfriend before. My mother is of the opinion it would be too dangerous to kiss if I suffer from CF. Is that right? Best regards, A.
25.11.2016
Treatment of the sinuses
Dear expert team, I have a question about the treatment of Pseudomonas in the sinuses. Due to an intermittend Pseudomonas infection of the airways, my CF center suspected, that Pseudomonas could also be in the sinuses and should be also treated there, even if the finding of Pseudomonas in the ...
07.11.2016
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