Topics

CF diabetes sugar replacement
Hello, what is your opinion about the sugar replacement "bio sweetener" - can a patient take it without risks (if he can afford it...)? Thanks
26.01.2018
Edible mould on salami
Often one can find on Italian or French salami a powdered coating with edible mould on the outer skin. Is this kind of mould dangerous for CF patients? Many thanks and best regards, S.O.
12.12.2017
Pancreatic inflammation in CF patient
My son of 4 has problems with his pancreas. It's about chronic pancreatic inflammation. What can I expect and is it recognizable?
14.08.2017
Food supplement Indeptra from USA
What do you think of this offer? The non-profit-CF research group Sharktank (https://sharktank.org) sells under www.planetarybiosciences.com the food supplement "Indeptra". Indeptra is a natural composition for CF containing polyphenoles and antioxidants. These polyphenoles have reduced ...
20.06.2017
Cleaning of the gut before endoscopy
Hello, I am lung-transplanted since 2010 and had a routine appointment for a gut endoscopy last november. The cleaning phase was unfortunately very difficult, as in spite of drinking of 3 litres endofalk-solution (macrogol) the day before, persisting hard pieces of stool could still be found on ...
20.06.2017
Kalydeco and enzymes
Hello, my daughter gets Kalydeco for 16 months now. Now it came out more and more, that she gets constipation and stomach ache with the normal dosage of enzymes. We have markedly reduced the enzymes then. Unfortunately, this was not successful either. Then we did not give any enzymes at all ...
12.06.2017
Disease on organs
Hello, Is a pancreatic sufficient child also at risk of developing hepatic impairment, or do these diseases only affect patients with pancreatic insufficiency? Thank you cordially
03.05.2017
Stomach pain after drinking milk
My 12-year-old CF daughter (with digestive problems since her birth) noticed that as soon as she had breakfast (cereals with cold milk, or a bowl of hot chocolate...) despite Creon, pain in the abdomen quickly occurs in the form of spasms. Do you think that the cow's UHT milk can be the cause of ...
03.05.2017
Salt capsules
Hello I would like to know if there is an alternative to salt capsules for a 5-year-old CF child because he doesn't tolerate tolerate them. Thank you
28.04.2017
Question on food oils
Hello , I am currently asking a lot of questions about alimentary oils. Can CF people consume cold-extracted oils (rather used by small specialized companies) compared to refined, inert and virtually unalterable oils? Can we consume unrefined oils, cold extracted oils or is there a risk of ...
17.03.2017
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