Topics

Persistent diarrhea in babies
My 13 month-old baby girl was reported suffering from a moderate form of cystic fibrosis since her 2nd month. She has food allergies and frequent constipation since birth. Stool analysis did not reveal any pancreatic problem, from what I understand. But today, she has diarrhea since a week. Not ...
19.05.2014
Pancreatic atrophy
Hello, the conclusions of the last MRI performed in January 4, 2014 shows = "slight increase of the cystadenoma size with no change of the pseudo solid portion of the pancreatic head, increase in dilatation of the main pancreatic upstream duct and pancreatic atrophy". Elastase value (April 17, ...
19.05.2014
Enzymes
I have two daughters, aged 3 and 1,5 years. They both have CF. The little one has not gained any weight for the last 3 months and weighs 11 kg. I have increased the creon following her doctors’ recommendations but to no avail. What is going on? Thank you.
19.05.2014
question about milk
Hello to you! First of all, a big thank you for this website: it's just great. Here is my question: my boy aged 20 months drank growth milk until now, but today he does not want to drink anymore. What to do? Knowing that he still drinks 3 baby bottles during the day (morning, after nap, night), ...
30.04.2014
ABPA - Kombucha fungus
Hello, can self-made Kombucha (a beverage from tea and also the Kombucha fungus) at home be envetually a problem for a CF patient with ABPA (allergic bronchopulmonary aspergillosis) ? The fungus is only be covered in a glas with a slide of paper towel. Many thanks in advance.
30.04.2014
Klebsiella species in the bowel
How can I find out why Klebsiella species have multiplied so massively and unhealthily in my bowel? Mutaflor® helps, however I fear that after finishing the treatment without getting rid of the cause everythings starts again.
30.04.2014
Variations of blood sugar values
Dear CF team, I have no proven diabetes in case of CF. The regularly performed OGTT (oral gulcose tolerance test) has been borderline for years, never unambiguously too high. The fasting blood sugar values are between 105 and 138. Insulin donation for the night has been discussed, however the ...
29.04.2014
Green stool
Hello, does one have to worry if the color of the stool is greenish? I do however not have diarrhea with that. I did not eat vegetables, either. I am 27 years old.
29.04.2014
Pankreatin
Hello, I would be interested in your opinion about the enzyme therapy of our pancreatic insufficient son. He gets Kreon® in a dosage of 4000 untis per gram fat. However, he has often fat in the stool and gains weight awfully bad. How high can the dosage of Kreon® be? Would it make sense to ...
29.04.2014
mutation delF508 / R553X
My son (8 years old) suffers for years from gastrointestinal problems. For him as a CF patient, lung problems are not the main focus. He has already had an ileus 2 times (as a consequence resection of 50 cm of the gut), furthermore an exocrine pancreatic insufficiency, an enlargement of the spleen ...
28.04.2014
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