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Keywords
- ABPA_Aspergillus
- accompanying diseases
- air-improving devices
- allergy
- animals_pets
- antibiotic therapy
- asthma
- complementary medicine
- covid-19
- diabetes
- diagnostics
- drugs side effects
- drugs under development_genetic therapy
- ENT
- general aspects
- genetics
- health care
- hepatobiliary disease
- hygiene
- i.v.-lines
- inhalation
- lung
- microbiology
- miscellaneous
- modulator therapy
- MRSA
- nutrition and GI problems
- oxygen supplementation_therapy
- physiotherapy
- Pseudomonas aeruginosa
- psychosocial
- public facilities
- recreational activities
- reproduction
- research
- social law
- sport
- swine flu_novel influenza
- transplantation
- travelling
- vaccination
- ventilation
Topics
- Hope
- Hello can we really have confidence in medicine? Must we really believe that one day cystic fibrosis will be cured? Is a treatment for Class 5 mutations underway? Best regards.
- 17.03.2017
- Prescription of Orkambi® not possible in Ireland
- Hallo, my boss in Ireland is a father of a 15-year-old girl with CF. Unfortunately Orkambi® is not licensed in Ireland. Is there a possiblity to get it in Germany for her? What does he has to do to get it? Is private insurance enough or do you have to live in Germany, paying a german health ...
- 17.03.2017
- Unlisted mutation: Research and treatment
- Hello, We just learned the diagnosis of our baby. It has a mutation that is not listed. Will this affect his future treatment? In short, will it be less well treated than a patient with the delta 508 mutation for example? Cordially.
- 24.02.2017
- RNA Therapy
- Hello, There is gene therapy, protein therapy and now RNA Therapy. What is it about ? And above all, would positive results in RNA therapy address all patients (such as gene therapy) or would it depend on mutations (such as protein therapy)? Thank you in advance for your answer.
- 20.01.2017
- Ataluren and research
- Hello, Some time ago I asked a question concerning Ataluren on this platform. Our two daughters (28 and 31) have the genotype Delta F508 and R1162X. Our CF physician mentioned at the last control, that recently quite promising results have been reported for Ataluren at a CF congress in London. ...
- 05.12.2016
- New curcuma preparation
- Hello, As far as I know, the effect of curcuma on CF is tested in the Netherlands in clinical studies. Now I have read, that a new preparation is going to be put on the market, that should guarantee a high bio-availability of curcuma and therefore should be especially suitable for CF ...
- 12.10.2016
- Lactoferrin
- Hello, are there treatments or research regarding the use of lactoferrin as a bactericidal substance in cystic fibrosis?
- 19.09.2016
- Research Update
- Hello, Could we have a French synopsis on positive results regarding research (Vertex, QR-010, PTC124, others?) for patient heterozygous for the F508del mutation? Thank you.
- 19.09.2016
- Quinsair®
- Hello, could I get some information about Quinsair® (inhalation of levofloxacin)? Since when it is on the market, how, where and when is can/should be used? Best regards,
- 25.07.2016
- QR-10
- Hello Which mutations are concerned by the QR-10 molecule which targets the correct synthesis of CFTR protein? Thank you for your reply
- 25.07.2016