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Keywords
- ABPA_Aspergillus
- accompanying diseases
- air-improving devices
- allergy
- animals_pets
- antibiotic therapy
- asthma
- complementary medicine
- covid-19
- diabetes
- diagnostics
- drugs side effects
- drugs under development_genetic therapy
- ENT
- general aspects
- genetics
- health care
- hepatobiliary disease
- hygiene
- i.v.-lines
- inhalation
- lung
- microbiology
- miscellaneous
- modulator therapy
- MRSA
- nutrition and GI problems
- oxygen supplementation_therapy
- physiotherapy
- Pseudomonas aeruginosa
- psychosocial
- public facilities
- recreational activities
- reproduction
- research
- social law
- sport
- swine flu_novel influenza
- transplantation
- travelling
- vaccination
- ventilation
Topics
- Gardening and kitchen garden
- Hello, My 4-year-old CF son has no particular worry like aspergillosis or pseudomonas infection (at least for now). He wishes that we plant flowers and that we maintain a kitchen garden together. I know that the aspergillus is in the ground, the compost etc.... If my son wants to do ...
- 16.05.2015
- Dental brace/retainer in Cystic Fibrosis
- Are braces (that cannot be removed) problematic from a hygienical point of view? Would you prefer a retainer (removable orthodontic appliance)? We as parents would rather prefer braces (that are attached to the teeth and cannot be removed) for our child. Many thanks.
- 06.05.2015
- Visit water park Neeltjejans
- What is your advice in planning a visit with a 6 year old patient with CF to the waterpark Neeltjejans on a blissful summer day? http://www.neeltjejans.nl/waterpark-attracties/
- 06.05.2015
- Laundry
- Is it better to wash clothes of my 3-year-old CF my daughter in isolation or may it be mixed with the clothes of all the family?
- 02.04.2015
- Brace
- Hello, should CF patients disinfect their moblie braces daily, respectively can they be put into the vaporiser? Thank you very much!
- 02.04.2015
- Bite splint
- Hello, I am suffering from CF, am chronically colonized with Pseudomonas and have now recieved a bite splint from the dentist due to nightly teeth pressing. Even if the dentist knows about my CF, he said after I have asked him, that I would not have to pay attention to a special hygiene ...
- 02.04.2015
- Brita water filter
- Many people nowadays use a Brita water filter at home to make the water lime-free. However, is such a Brita a good idea for people with cystic fibrosis? Because we’re talking about 'stagnant' water ... Thank you for your advice!
- 25.03.2015
- Water from the Rhone River
- Hello as a mother of a little CF boy with cystic fibrosis and in anticipation of the beautiful days, I'd like to have your opinion. This summer at the grandparents of my son, the swimming-pool (so contact with body and possibly mouth), a small shower before swimming, but also a small sink in a ...
- 25.03.2015
- wet clothes
- Hello, I’d like to know if it is not advisable to hang out my damp clothes in my house with a CF child? (I am thinking in particular of moisture risks). Thank you for your answer.
- 25.03.2015
- Pseudomonas
- Hello, My two nephews the eldest 4y and the youngest 11m are suffering from CF. They carry the F508del / 3272 26 AG. The youngest has been screened at birth, while the eldest only now (false negative at birth). The eldest had no care for 4 years. Lungs appear more damaged thereby. He just had a ...
- 03.03.2015
