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Keywords
- ABPA_Aspergillus
- accompanying diseases
- air-improving devices
- allergy
- animals_pets
- antibiotic therapy
- asthma
- complementary medicine
- covid-19
- diabetes
- diagnostics
- drugs side effects
- drugs under development_genetic therapy
- ENT
- general aspects
- genetics
- health care
- hepatobiliary disease
- hygiene
- i.v.-lines
- inhalation
- lung
- microbiology
- miscellaneous
- modulator therapy
- MRSA
- nutrition and GI problems
- oxygen supplementation_therapy
- physiotherapy
- Pseudomonas aeruginosa
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- reproduction
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- swine flu_novel influenza
- transplantation
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- ventilation
Topics
- Stenotrophomonas maltophilia
- Hello, We learned one month after birth that our 4 months-old daughter was diagnosed with CF. She carries the DF508 and G3272-26A mutations. She is followed up every month at the CF Center X, has respiratory physiotherapy every day and is currently pancreatic sufficient. My question is, we just ...
- 03.12.2014
- Carpet and picking mushrooms in the forest
- Hello I’d like to know what is better in a room for a child with cystic fibrosis: carpet or linoleum like plastic soil? And I'd would like to know if it's dangerous to pick mushrooms in the forest with the Pseudomonas or other bacteria present in the ground and moisture? Thank you
- 03.12.2014
- Mycobacteria
- Hello, My 6 year old son just had a sputum culture that shows the presence of mycobacteria. I wished to have more information on this germ and whether my son will have this germ all the life as I gather that it is resistant to antibiotics. Also I'd like to know where is the research regarding ...
- 03.12.2014
- Infection in case of CF, even once possible without antibiotic?
- Dear expert team, my question: Can/should/is it allowed for a child with CF to get through an infection with increased cough even once without the intake of an antibiotic? There are controversing opinions about this. Some of the doctors advise immediately an antibiotic drug, others are rather ...
- 03.12.2014
- Correctors and germs
- Dear expert team, supposed one of the new drug combinations e.g. by Vertex would be suited for a correction of the homozygous Fdel508 defect, would encourage the cells to take up their tasks to at least 10% until e.g. 40%, and would result in a similar improvement concerning FEV1 and ...
- 25.11.2014
- Why waiting instead of treating?
- Hello, a sputum sample has been collected from my 7-month old baby last Sunday because of a greasy cough and a runny nose. Our next medical visit is planned on the next Thursday and treatment is only based on nasal irrigation with isotonic saline and acetaminophen in case of fever. I am anxious ...
- 10.11.2014
- Staphylococcus aureus
- Hello, We got to know one month after the birth of our now 3-months-old daughter that she was suffering from CF. She carries the DF508 and G3272-26A mutations. She is followed every month at the CF Center. She has every day respiratory physiotherapy and is until now pancreatic sufficient. My ...
- 04.11.2014
- Pandoraea sputorum
- Hello, A little time ago, the sputum culture that was made during a quarterly visit revealed that my 13-year-old son was carrying the Pandoraea sputorum. A cure has been quickly programmed. Can you tell me what are the places that bear a risk of contamination with the germ? Thank you for your ...
- 04.11.2014
- Candida albicans and Aspergillus
- Hello, I would like to ask you, how you judge the result of our daughter. Our daughter is nearly 5 years old. At the age of 4 months, she has been diagnosed to suffer from CF. She is doing well and we are very well cared for in our CF center. Until now, throat swabs showed mostly Staph. ...
- 20.10.2014
- Burden with germs
- Dear ECORN team, I would have a rather uncommon question. I am writing a seminar paper on the topic "problematic germs in case of CF" and would like to write something about the occurrence on a percentage basis of three different germs. It deals with the following germs: Pseudomonas ...
- 20.10.2014