Topics

Inhalation with 3% NaCl solution
Dear expert team, at first, many thanks for your always quick and competent answers!! My daughter (23 moths, CF) has been prescribed Mucoclear® (3% NaCl) for inhalation. Before, she inhaled always with 0,9% NaCl and Berodualin® (fenoterol and ipratropiumbromide, both bronchial widening ...
13.10.2014
No effect?
Hello, I suffer from CF and take for one week Bronchitol®. However, I do not have the impression at all, that it transports my mucus. During inhalation I cough severly, however it does not come really anything out, it is more a dry cough. I am now a bit insecure, I cough now more than before ...
13.10.2014
Irritating cough
Hello, since a short period of time I have a strong irritating cough, so that I can hardly breathe in between! I inhale Bronchitol® as well as Tobi®! Probably one can help me further! Many thanks in advance, S.
13.10.2014
Inhaled salmeterol/fluticasone (Seretide®)
Hello, I would know something about the intention to inhale salmeterol/fluticasone (Seretide 50®) each day, even when the child is not secreting. Thanks very much.
29.09.2014
Tobramycin inhalation
Hello, is there any information if tobramycin inhalation during early pregnancy can be harmful for the baby? We have to inhale tobramycin twice a day with our 2-year-old CF daughter and we ask ourselves if the vapours that we share by sitting next to her could harm the unborn. Many thanks
29.09.2014
Colistin
Hello, my 11-year-old daughter daily inhales colistin aerosols delivered via an e-Flow. My MD has informed me about a dry powder form of colistin in capsules as it exists for tobramycin. I would know when the dry powder colistin will be available in France. Thanks very much for your responses.
22.09.2014
Pseudomonas in the nasal lavage
Dear expert team, First of all many thanks for your efforts. As a partner of a CF patient I am already for a longer time silent reader of your expert advice. Now I would like to pose a question for the first time. In the nasal lavage of my wife (CF, 31 years old, FEV1 85%) Pseudomonas had been ...
21.08.2014
Kreon® dosage
Dear experts, I have a 4 year and 9 months-old boy diagnosed last year in October 2012 with cystic fibrosis, after he had two sweat tests, the first with the value 98 and the second 58. The sweat test was done because the child had chronic diarrhea for about a year. As a treatment we currently ...
17.09.2014
Headache due to Ventolin® (salbutamol)?
Hello, our 7-year-old daughter suffers for about 3 months regularly about 3 hours after the inhalation in the mornings of 3-4 puffs Ventolin® (salbutamol aerosol) and 6% NaCl from partly very strong haedache. An EEG and further investigations have been without pathological findings. Could this ...
28.07.2014
Cayston®
I’ve heard (by a service provider) about a new molecule named “Cayston®” that is used to treat CF adultes againt Pseudomonas aeruginosa. This molecule would be used with a new machine that will arrive on the market (or already has?). This person could not tell me more. I turn to you in order ...
14.07.2014
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