Topics

Bronchitol®
Hello, I would like to know if Bronchitol® (Mannitol) is finally available in France and if the study for children older than 6 years has given positive results. Thank you
04.03.2013
Eradication of Pseudomonas aeruginosa infection
My daughter cultured Pa at the last clinic visit. She was symptom free. The doctor prescribed 28 days of inhaled Antibiotic, and I asked to add an oral antipseudomonal, but she would not. Finished the 28 day cycle, and a week later my daughter has a raging lung infection and now pneumonia. I ...
04.03.2013
Mucolytics - do they make sense for infants?
Hello, We have a 4-year-old daughter with CF. For 3.5 years she gets 2 x 2,5 ml ACC (Acetylcysteine) daily (if there is more mucus a bit more). We are asking ourselves if it really makes sense to administer ACC on a daily basis. Our general practicioner said once that it would be good to ...
26.02.2013
Aerosols, when, why
Hello, What motivates the prescription of aerosols? Age (e.g. from 3 years)? Are they prescribed as a preventive or curative treatment? Or both? Thank you for your answer.
04.02.2013
Sinus pulsating aerosolsystem
Are there clinical studies about using the pari-sinus with CF with principally sinusitis problems? Is there somebody with experience with the pari-sinus?
04.02.2013
Bicarbonate preparation for inhalation
Dear expert team, Is there a ready-to-use preparation for inhalation with bicarbonate on the market? [The question was originally asked on the German platform of the expert advice] I would like to inhale it with a jet nebuliser. If there is no such preparation on the market can I just add a ...
24.01.2013
Hoarseness with Pulmozyme® (rhDNAse)- what to do?
Dear expert team, For 2 days I inhale one time daily with Pulmozyme® (rhDNAse). From today on, a strong hoarseness has begun. If it should continue to such an extent, I will be forced to discontinue Pulmozyme®, as in my case the voice is all alone important for my profession. Pulmozyme® ...
22.01.2013
Aerosol in an 18 months-old child
A Pseudomonas aeruginosa has been found for the first time in the sputum of my 18 months-old son. The CF Centre physicians have decided to treat him with twice daily nebulized antibiotics (15 minutes per nebulization). He totally refuses the nebulization and when I force him to do that, of course ...
21.01.2013
N-acetylcysteine (Mucomyst®)
Why my 16-year-old CF boy has never received a treatment with N-acetylcysteine? Is this drug not indicated in such a disease? My daughter suffering from a viral bronchitis has been treated with N-acetylcysteine. Thanks for your response.
14.01.2013
Complementary inhalation with alkaline solutions sensible?
Paul McGray in Iowa was recently able to show that inhalatoin with alkaline solutions normalizes the PH value of the lungs (e.g. McCray P. Inflammation and infection, lessons from the CF pig model. 35th European Cystic Fibrosis Conference, Dublin, Ireland, 6–9 June, 2012). Are any corresponding ...
10.01.2013
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