Topics

voice and CF
Hello I am a student in audio phonology, and I make a presentation on cystic fibrosis, and the impact of this disease on patients' vocal cords, could you tell me if there are few references in the field ? Thank you!
26.02.2013
Sinus pulsating aerosolsystem
Are there clinical studies about using the pari-sinus with CF with principally sinusitis problems? Is there somebody with experience with the pari-sinus?
04.02.2013
Right heart strain
Dear expert team, My daughter was diagnosed with right heart strain and I would like to ask whether this means her fitness is a bit limited now. Many thanks.
15.01.2013
ions exchange
Hello, my daughter (10 years, suffering from cystic fibrosis) was found during a visit to the emergency (tarchycardia, low grade fever, loss of sight - she saw only black and red, weakness, tremors of the limbs) to have an abnormally low potassium in the blood. Everything was back to normal after ...
14.01.2013
Cause of cough?
Dear expert team, my son (CF, 4 years old, 1.07m, 16.5kg, mild progression so far) rarely coughs when he does not have infections, only during strong physical action and sometimes after inhalation. For some time now, he has also been having a continuous cough (dry nervous cough) that starts ...
13.12.2012
Follow-up question on nasal irrigation
Hello, I understand the problem of tap water potentially being contaminated with bacteria. What do you think about the following alternatives to boiling water: 1) distilled water 2) non-carbonated bottled water Can I use these two alternatives instead of tap water for nasal irrigation or ...
13.12.2012
nasal washing
Hello, We were advised to wash the nose of our 4 month old CF child every day even if he is not congested. What do you think? Could it cause irritation? Thank you
11.12.2012
Causes of hair loss
Dear expert team, Since an exacerbation at the end of March 2012, which was probably caused by ABPA, I (25, female, CF) have to take several additional drugs. Around May 2012 I noticed that I am losing decidedly more hair than earlier. I initially blamed the itraconazole I had started taking, ...
11.12.2012
Voice hoarseness
My child is 3 years old and suffers from CF. For a long time there is a hoarseness in his voice. Does it have anything to do with CF? I blame it on the Airway clearance therapy, or to the fact that he screams a lot. I would like your opinion.
15.11.2012
Immune system and CF
Hello, in another answer you are writing about "hints from research that confirm a dysfunction of the immune system in CF". What does that mean and which new approaches result from this? Regards, [Comment by ECORN-CF team: This question refers to another question "Flu vaccine as nasal ...
15.11.2012
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