Topics

cystic fibrosis and celiac disease
Hello, I was diagnosed to have celiac disease, I have no particular symptoms and I would like to know the benefit / risk of a strict gluten diet in relation to CF? What are the risks of not permanently being absent from gluten?
06.06.2015
Vitamins and nutritional supplement
Hello, our child tends to an ADHD like behaviour. Often exceedingly restless, impatient etc., in many questionnaires about ADHD a diagnose has been assured. We have been at two specialists, one diagnosed undoubtly an ADHD, the other disclaimed... Because of the illness of CF I prefer the ...
02.04.2015
nasal polyposis
My 15-year-old son presents a worsening of his polyposis. He's treated by rh-DNAse via mask for his chronic sinusitis, tobramycin inhalation and colimycine inhalation in alternation one every 2 months because of a chronic colonization of Pseudomonas and azithromycin and nasal cortisone ...
25.11.2014
Grommets (tympanic tubes) in case of CF
Hello Dr. Mainz, 3 months ago, grommets have been placed in both ears of our son, as he had an impairment of hearing. As one of those grommets got out of place now, another one should be placed in 2 weeks. We read your answer that tympanic tubes are not favorable in case of CF. What should we do ...
03.11.2014
Grommets (tympanic tubes) yes or no?
Hello, Our 4-year-old daughter suffers from CF! She has an impairment of hearing caused by mucus behind the ear (probably due to a precedent otitis media)! At first, we were told to wait and have a control after 3 months, if the finding will not improve: grommets…. Now we have 2 opinions, ...
06.10.2014
CF and cortisone
Dear expert team, as a CF patient with severe allergic asthma (trees, grasses, fungus spores) I face the problem to be forced to reduce the cortinsone (prednisone 10 mg daily / symbicort 200® (budesonide and formoterol) 3puffs 3 times daily) that I take for 10 years, due to recurrent ...
08.07.2014
Renal insufficiency stadium II
Partly increased creatinin values in the blood (85/94/96/100), measurement of the glomerular filtration rate according to the MDRD formula (67ml/min/body surface on the 9th december 2013, on the 24th february 2014 - 62.7) at a control done by the general practitioner. These values fluctuate and ...
30.06.2014
Flight travel and blocked nose
Dear experts, we are flying to Florida (9 hours) with our daughter (10 years old). She has a blocked nose for a longer time, that is treated with the PariSinus® device and nasal shower and nasal cortinsone. She always has great pain during landing. Can one do even more? Is such a long air ...
24.06.2014
Stiching in the knee
Hello, I am 39 years old and have CF/diabetes, I would like to know what it is about concerning stiching knee pain and an infection of the lung. Is there any correlation there? I observe this for some years now. I only know that there are some CF patients who suffer from arthritis or ...
14.05.2014
Inflammation of the salivary glands?
Hello, My son (7 years old) suffers from CF and has an inflammation of the salivary gland for 4 weeks, he has been given antibiotics and it did not help. We have been to the ENT doctor and he said that this would rather be a typical finding in CF.????? An ultrasound has been done, however there ...
30.04.2014
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