Topics

4th operation of the sinuses?
I face the question to have our son be operated at the sinuses for the 4th time. [Remark of the translator: I left out the name of a German hospital that was considered for the operation]
30.04.2014
Strong cough at night
Hello, I have a 6-year-old daughter with CF and she is coughing for nearly 2 months, at day time less and at night time very much. What can I do for relief? She is taking antibiotics for the whole year with only few pauses, thus steadily. From the cough blocker noscapin she gets stomach ache. ...
03.02.2014
Blood pressure and heart rate in children with cystic fibrosis
Hello Can cystic fibrosis cause problems of blood pressure and / or elevated heart rate in CF adolescents (110 beats / min, he is 14 years old)? Are the two related? If so, would there be a link between cause and effect? Early infection or something else? Thank you very much in advance for your ...
23.12.2013
Role of CFTR protein
Hello, Can you explain in great details the mechanisms of antimicrobial immune defense in CF and the role of CFTR in these mechanisms. Thank you for your answers
11.12.2013
Nasal polyps, complete occlusion - 12-year-old son
My newly diagnosed 12-year-old son, 2 positive sweat tests, complete occlusion of the right and left nose, should undergo an operation. Who has experience in this field, how are the chances for his cure (risk of relapse?) respecitvely which kind of therapies, food supplements etc. are there for ...
03.12.2013
Sleep apnea?
For a long time (several years) I "buzz" when I fall asleep or while I am sleeping. It deals with a kind of groaning noise, when I am woken up I often remember to have just had some talks in my dreams. Until now I thought this was due to the lively dreaming, however I have come across the sleep ...
26.11.2013
Paleness
Dear expert team, My daughter is 8 years old and has CF (F508 del homozygous). Her oxygen saturation and lung function are good, and everything else has also been okay so far. She is very pale, so that after a picture was taken of her recently, she said she looked like a vampire. What can I ...
22.10.2013
Nasal spray
Hello, I had asked a question to you about the nasal spray sometimes ago, but my question was not good. I wanted to know how long the spray can be open before there is a risk of finding Pseudomonas aeruginosa in the spray. You said “2 months”. Do you think that the spray could not be used after ...
15.10.2013
Nasal spray
Hello, I would know how many time a nasal spray may be used after the first use. Thanks for your response.
07.10.2013
Use Nasonex® in Pari Sinus?
I had a surgery due to many nasal polyps (adenoids) and am now using Nasonex® (nasal steroid spray), nasal douche and Pari Sinus as recurrence prevention. Can I inhale Nasonex® with the Pari Sinus? Many thanks and best regards, I. J.
12.08.2013
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