Topics

Drugs side effects
Dear expert team, I (19y) have a question concerning long-term therapy with antibiotics of the group of fluorchinolones (levofloxacin, ciprofloxacin). Is there any experience with CF patients concerning pain of joints, muscle pain repectively ruptures of the Achilles tendon, that do not heal? In ...
07.10.2016
Nuvaring® and levofloxacin
Are there any interactions between Nuvaring® (vaginal ring releasing hormons for contraception) and levofloxacin 500? I took it for 7 days. I have started last week on wednesday and stopped yesterday. I have taken the ring our last saturday and will put it in again on the coming saturday. Is this ...
07.10.2016
Side effects of Quinsair® (levofloxacin)
Hello, I (CF patient) have had very unpleasant side effects when using levofloxacin orally. Because of the recommendation of my physician I took it in spite of this for several days, with the result, that the moderate side effects turned to be very strong when taking it again (the foot was ...
28.09.2016
Changes of symptomes via antibiotics
Hello, I take for one week ciprofloxacin and cefuroxim due to a worsening of the cough and increased inflammation values. Now it is like this, that the cough has gotten much better, also I have no problems with breathing, however there are still quite viscous secretions present. Furthermore I ...
05.08.2016
Blood in the sputum
Dear expert team, Pseudomonas aeruginosa has been found in my sputum. Already a few months ago, I did inhalations with Colistin (2 x 1 Mio). I tolerated the inhalations well. The health condition improved. As Pseudomonas has soon been found again, we decided to do a 3 months eradication therapy ...
04.07.2016
Contraception
Hello, I am carrying the F508del, I am 21 years old I am diabetic and I have a thyroid dysfunction (hypo) and I take the pill "leeloo®". I saw several articles on the need to focus most heavily dosed ethinylestradiol pills. Concrening CF articles I see the opposite. What is that about? In ...
20.06.2016
Orkambi®
Good evening, I have read the side effects of Orkambi®. What are the results of studies in countries that prescribe this treatment for a couple of years now (regarding these side effects)? Best wishes
13.05.2016
Cayston® and Pregnancy
Hello, Have we got data regarding Cayston® and pregnancy? Especially during the 1st 4 months? Thank you
11.05.2016
Contraception in case of the intake of Orkambi® or the like
My daughter (20 yrs) takes part in a Vertex study, the drug is similar to Orkambi®. For contraception, the pill and all other hormone-based devices, are not suitable. How can she do an effective contraception without being afraid of getting pregnant? The gynecologist has no understanding for her ...
25.04.2016
Orkambi® Side Effects
Good evening Do you have information on the side effects of this treatment (Orkambi®) available in France since shortly but already widely distributed in CANADA or the USA? The side effects are severe and there is little feedback to take a decision. Best regards
24.04.2016
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