Topics

Vicks VapoRub®
My 3-year-old daughter suffers a little from congestion. She has an antibiotics and budesonide treatment. I wanted to know if products such as Vicks VapoRub® are banned or dangerous, as well as such as syrups, because her nocturnal cough wakes her and I would like to have a relief.
03.03.2016
DMSO dimethyl sulfoxide in case of CF
Acoording to Dr. Hartmut Fischer, DMSO is a channel opener and acts against scarring (CF?!). In the laboratory they are working on the chloride channels with DMSO. It keeps the chloride channel open. Does it make sense to use DMSO orally or transdermally in case of CF? Are there any studies ...
11.01.2016
Hydrogen peroxide
I have read, that 0.3% hydrogen peroxide could be helpful if used with a nebulizer in case of lung diseases. Furthermore it says that i.v. treatments in case of COPD/emphysema can stop the progress of the illness and partly even improve it. Are there any experiences in connection to CF? I could ...
03.01.2016
Mucomyst® [n-acetylcysteine]
Hello, Some CF centers prescribe Mucomyst® (n-acetylcysteine), others not at all. There seems to be a reserve by some doctors about this drug still effective to thin the mucus. I want to know why. Thank you
24.11.2015
Substitution of vitamins
Hello dear expert team, at the moment one can read in the press, that vitamin tablets respectively antioxidants could have a damaging effect, especially in cancer patients. I (CF patient, female, 38) ask myself, if I should go on taking my vitamin tablets. Could there be a connection between the ...
30.11.2015
Morphine
More commonly, morphine is used to relieve great suffering. What about for CF people in severe respiratory failure? Can they be treated with morphine if needed? If not, what is the alternative treatment, excluding analgesics?
26.07.2015
Periactine
Hello, Could you, please, talk about the use of Périactine to increase appetite and thus weight. I know that some patients use it but our CF center doesn't seem to know it. I wondered whether studies have been conducted on this medicine or if it's rather used in a isolated way. Thank you very ...
07.06.2015
Really always 6% NaCl in children?
Hello, we have a 6-year-old daughter (CF) with a very mild pulmonary course. For about 3 years she inhales 3% NaCl (and 4 drops salbutamol), before this 0,9% NaCl. The center now recommends that our daughter inhales in the future with 6% NaCl (plus 5 drops of salbutamol). Is this reallly ...
07.02.2015
Request: IV worsening of the saturation
Many thanks, Dr. Fischer, this would be on the other hand quite good! I have forgotten something...after the iv therapy (2x3 millions colistin and 3x4g tazobactam/piperacillin) I have problems with glaring light...supermarkets or strong sunlight are hardly bearable and I have problems with large ...
10.01.2015
Probiotics in case of long term antibiotic therapy
Hello, my daughter (6-years-old, CF) gets for some years a long term antibiotic treatment. She had often diarrhea and abdominal pain, now she gets for nearly one year LGG capsules and the problems have been gotten better a lot. The health insurance, however, does not want to cover the costs for ...
03.01.2015
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