User login
Enter your username and password here in order to log in on the website:
Keywords
- ABPA_Aspergillus
- accompanying diseases
- air-improving devices
- allergy
- animals_pets
- antibiotic therapy
- asthma
- complementary medicine
- covid-19
- diabetes
- diagnostics
- drugs side effects
- drugs under development_genetic therapy
- ENT
- general aspects
- genetics
- health care
- hepatobiliary disease
- hygiene
- i.v.-lines
- inhalation
- lung
- microbiology
- miscellaneous
- modulator therapy
- MRSA
- nutrition and GI problems
- oxygen supplementation_therapy
- physiotherapy
- Pseudomonas aeruginosa
- psychosocial
- public facilities
- recreational activities
- reproduction
- research
- social law
- sport
- swine flu_novel influenza
- transplantation
- travelling
- vaccination
- ventilation
Topics
- Edible mould on salami
- Often one can find on Italian or French salami a powdered coating with edible mould on the outer skin. Is this kind of mould dangerous for CF patients? Many thanks and best regards, S.O.
- 12.12.2017
- Pancreatic inflammation in CF patient
- My son of 4 has problems with his pancreas. It's about chronic pancreatic inflammation. What can I expect and is it recognizable?
- 14.08.2017
- Food supplement Indeptra from USA
- What do you think of this offer? The non-profit-CF research group Sharktank (https://sharktank.org) sells under www.planetarybiosciences.com the food supplement "Indeptra". Indeptra is a natural composition for CF containing polyphenoles and antioxidants. These polyphenoles have reduced ...
- 20.06.2017
- Cleaning of the gut before endoscopy
- Hello, I am lung-transplanted since 2010 and had a routine appointment for a gut endoscopy last november. The cleaning phase was unfortunately very difficult, as in spite of drinking of 3 litres endofalk-solution (macrogol) the day before, persisting hard pieces of stool could still be found on ...
- 20.06.2017
- Kalydeco and enzymes
- Hello, my daughter gets Kalydeco for 16 months now. Now it came out more and more, that she gets constipation and stomach ache with the normal dosage of enzymes. We have markedly reduced the enzymes then. Unfortunately, this was not successful either. Then we did not give any enzymes at all ...
- 12.06.2017
- Disease on organs
- Hello, Is a pancreatic sufficient child also at risk of developing hepatic impairment, or do these diseases only affect patients with pancreatic insufficiency? Thank you cordially
- 03.05.2017
- Stomach pain after drinking milk
- My 12-year-old CF daughter (with digestive problems since her birth) noticed that as soon as she had breakfast (cereals with cold milk, or a bowl of hot chocolate...) despite Creon, pain in the abdomen quickly occurs in the form of spasms. Do you think that the cow's UHT milk can be the cause of ...
- 03.05.2017
- Salt capsules
- Hello I would like to know if there is an alternative to salt capsules for a 5-year-old CF child because he doesn't tolerate tolerate them. Thank you
- 28.04.2017
- Question on food oils
- Hello , I am currently asking a lot of questions about alimentary oils. Can CF people consume cold-extracted oils (rather used by small specialized companies) compared to refined, inert and virtually unalterable oils? Can we consume unrefined oils, cold extracted oils or is there a risk of ...
- 17.03.2017
- Mutations F508del / L227R
- Hello, My 3 year old son has cystic fibrosis that was diagnosed less than a year ago. The two mutations found were F508del and L227R. As we live in Morocco we do not have a genetic counseling center that can tell us the degree of severity of this type of mutations and how this will develop in the ...
- 24.02.2017