Topics

Circulatory breakdown after rinsing of port-a-cath
Hello! As my veins are not good and I have many events of blood taking, I got a porth-a-cath. Half an hour later, I get extreme seizures. I have to stretch me and to yawn all the time. I get a headache and I am cold from the inside of me. Also I am bit confused then. However only a bit. Why does ...
26.05.2017
Treatment recommendation for persistent Pseudomonas/Staphlococci infection
Dear team, I have received a lung transplantation (2010) and suffer from CF. For 6 months, my lung function decreases rapidly and since then, it is constantly low. Antibody tests, bronchoscopy, CT and x-ray had already been done. Only in the bronchoscopy, Pseudomonas and Staphylococci could be ...
19.05.2017
i.v. Pseudomonas eradication therapy - dosage
Dear expert team, I would have a question about the right dosage concering an intravenous Pseudomonas eradication therapy. After an inhalative trial did not bring long-lasting sucess in order to eradicate Pseudomonas completely, an i.v. therapy had been planned with my physician at the last ...
12.05.2017
Tonsilectomy versus longterm antibiotic therapy
Dear expert team, our daughter, 8 years, CF, suffers for one year from repeated infections with streptococci. She is 118cm heigh and weighs 18,4 kg. Each infection is accompanied by high fever and reduced health status. Due to the pain in the throat, she deteriorates quickly and does not drink ...
12.05.2017
Pregnancy and aerosol
Hello, Mum of a 20-month-old CF baby, I just learned about my new pregnancy. While waiting for a prenatal test to know if the child is affected, can I continue to administer tobramycin and colistin aerosols (and pulmozyme in the morning) alternately twice a day. Knowing that during aerosol ...
13.04.2017
Pregnancy, Patiente and aerosoltherapy
Hello, I suffer from CF and in the second months of pregnancy. Can I continune my aerosol therapy with rhDNAse (Pulmozyme), colistin and tobramycin? What about the oral antibiotics (azithromycin etc)? Or what about potentailly necessary i.v. therapies? Is this without danger for my baby? Many ...
13.04.2017
Breathlessness during intravenous treatment
Hello As soon as I am on an intravenous antibiotic treatment iwth Ceftazidim and Cotrimoxazole orally, I am very breathless while without treatment I am not. Do you know if it's because of antibiotics? Thank you
17.03.2017
White secretions
Hello My 20-month-old baby has an inflammation of the nasal mucosa since December. His nose secretions only flow in his throat and do not come through his nose. On the advice of my pharmacist, I gave him a cure with "actisulfur"and the mucus came out white, whereas when I washed his nose ...
17.03.2017
Haemophilus influenzae
My daughter, 1,5 years old suffers from CF and has now for the first time Haemophilus influenzae in the throat swab. Our treating CF physician regards it as a harmless germ, it is therefore not treated at the moment. I would like to have a second opinion. Of course, we do not want to give ...
17.03.2017
Thrush
Hello, What can we do to prevent our 2 year old from getting thrush (candida fungus)? She has it regularly, especially after the antibiotic cures. It spoils life because she refuses to eat and it is very painful. Thank you for your help.
24.02.2017
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