Topics

Ecologic swimming pool
Is it safe to swim in an ecologic swimming pool concerning CF?
11.11.2017
Water detector
We have a water detector since summer. Does it have a positive effect on prevention of infection with Pseudomonas?
06.10.2017
Pseudomonas Vaccine
Could you give me some news regarding a vaccine against Pseudomonas. A clinical trial was ongoing and had to end on 2015 (I read this on a posted question)
03.07.2017
Visit Tropical Greenhouse Zoo
Hello, Our family will soon be visiting the Beauval Zoo. We wonder if it's possible for our 3-year-old CF son to visit the greenhouses to see the crocodiles and the other tropical animals. The greenhouses look great and there is an air filtration system, but this remains a very humid ...
26.06.2017
Cleaning of holiday appartment
Hello, many thanks for your support! We would like to go to a holiday apparmtent, soon. As one never knowns, who lived there before (dogs etc.) I would like to know, how I can get the floor/tiles quite sterile. Our daughter is 14 months old, crawls and therefore is in constant contact with the ...
19.05.2017
Treatment recommendation for persistent Pseudomonas/Staphlococci infection
Dear team, I have received a lung transplantation (2010) and suffer from CF. For 6 months, my lung function decreases rapidly and since then, it is constantly low. Antibody tests, bronchoscopy, CT and x-ray had already been done. Only in the bronchoscopy, Pseudomonas and Staphylococci could be ...
19.05.2017
i.v. Pseudomonas eradication therapy - dosage
Dear expert team, I would have a question about the right dosage concering an intravenous Pseudomonas eradication therapy. After an inhalative trial did not bring long-lasting sucess in order to eradicate Pseudomonas completely, an i.v. therapy had been planned with my physician at the last ...
12.05.2017
Drain gutter for walk-in shower
Dear experts, recently our bathroom has been renovated. A walk-in shower has been installed with a drain gutter (similar to those in swimming-pools). The drain gutter is covered. However, the siphon is quite large and water is standing in it. There are no windows in the bathroom. Can the stagnant ...
03.04.2017
Reverse osmosis device
Dear expert team, we are planning to install in our home a reverse osmosis filter device. There are two alternatives offered: 1. Standard device, that uses a 10 liter storage, that is normally filled always automatically and from which the rinsed water can be taken out quickly 2. „Direct ...
17.03.2017
To empty out the dishwasher/ washing machine
Hello, our daughter is nearly one year old. 3 months ago, we got the diagnosis CF deltaF508. At the moment, she likes to help in the household very much. This includes to emtpy out the washing machine and especially to empty out the dishwasher. Is she allowed to help or are there too many germs? ...
06.02.2017
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